Shannonigans Lung Fund is in full effect! As you know we have started fundraising for future medical costs associated with lung transplant (pre and post).
I’m going to answer some questions that I have been asked often.
- Are you on the transplant list yet? No, I am not on the transplant list yet. I am in the process of researching transplant centers so I can make a better educated decision.
- When will you be put on the list? Once I decide on a transplant center, I will then make appointments to be seen there. Most likely for a “get to know” you visit first and then will start the evaluation process.
- How long will take for you to get lungs? That’s the million dollar question. Once I’m listed I will be given a lung allocation score (LAS) which is a numerical value used by the United Network for Organ Sharing (UNOS) to assign relative priority for distributing donated lungs for transplantation within the United States. So to answer that one I won’t know. It’s a day to day, week to week, and even month to month wait. You never know.
- Will you still have Cystic Fibrosis? My body will still have since CF is genetic and made up in my genes. However, the new lungs will not have CF genetically. My body will still do all the other CF stuff that it does. After transplant I will be taking anti-rejection meds to help my body accept the donor lungs as my own.
- Will you be good to go after the transplant and not have to worry about anything? I will have to be followed very closely to monitor for rejection. Right after transplant I will be seen very often but as time goes on the time between check-ups will get longer. A lung transplant is defiantly not a cure but a new way of life.
Now comes the reason for the need to fundraise. Yes, I have medical insurance and it will cover most everything. Most all transplant centers require you to have a large sum of money in the bank before being listed. Large sum can be anywhere from $10,000-$20,000. The large sum of money is there to cover any medicine copays because there will be A LOT of anti-rejection meds after the transplant. The money will also be there to cover living expenses like hotel and food for those taking care of me. It will also help keep things afloat at home while my husband is taking care of me and a multitude of things that will pop up during that time. I don’t want anyone worrying about anything when they are there to take care of me. For instance if they are hungry, I want them to have the means to get food and to not go broke eating hospital food or fast food for 2 months.
There are many ways we can fundraise and we need your help to make it happen. We will be hosting the cornhole tournament again this year since it went off without a hitch and turned out fabulous! I have thought of doing a kickball tournament, a dodgeball tournament, a softball tournament, silent auction for baskets full of goodies, poker games, bake sale, garage sales, and many many more ideas!
I ask that you join us in our fundraising ventures. Pick 1 or 2 things that peek your interest, get some friends together and start raising some money! The more people we have taking a lead on fundraising events the better. I know that with just me and my husband we won’t be able to raise all the money we need by ourselves. We need everyones help. Now’s the time to talk to those rich, generous and possibly famous people you know. Any dollar amount will help us get to our goal of $15,000. We just have to spread the word.
Here are 2 ways you can donate:
Both of the above links will take you right to where you donate. If you take the challenge and take on a Shannonigans fundraiser of your own, you can donate the donations you collect through your fundraiser to either of the above places.
Side note: I have been asked a few times about when Shannonigans gear be available to purchase again. We need enough people interested and willing to buy in order for Goteez to print the gear. I may entertain the idea closer to when we hold the cornhole tournament. Unfortunately, I can only get the advertising for Shannonigans gear out so far without help. All of my friends and family already have their gear and don’t need anymore. Basically, we need a new audience of people that would actually be interested to advertise to . I’ll let you all think on that…haha
Thank you note: I want to thank each and every person that donated towards the lung fund after my moms passing in her memory. I was humbled and honored to call you all friends and family as the check and cash came in. Words can’t express how thankful I am. There were many tears shed while opening cards. Thank you all so very much!!!
Until next time…