A few months ago I shared about the new CF drug Symdeko (Symdeko post). After much tossing around of the idea of taking the new drug I finally decided to give it a try. I started the drug 3 days ago. It is twice a day and I have to take it with a meal/snack containing a good amount of fat to help it absorb.
I shared my decision to start the drug with my facebook and instagram friends and family a few days ago. I share it with my blog readers today because I’ve had people asking if I can tell anything. Let me first say, there has been no “magical moment” as of yet. I am coughing more and have more of a loose cough, not necessarily coughing up more all the time. There hasn’t been a major “purge” of mucus as others have spoken of. I have not had a headache either that others have said they have had as well. No complaints here on that one. Other things I have experienced are the gut issues, my gut is adjusting. Part of CF is digestive/pancreatic issues. I’ll just say that I’m more gassy and bowel movements are well….”different.” My anxiety seems a little off kilter.
I will keep you all posted as I progress along this journey. The goal of taking this drug is to keep my lung function where it is or even get a bump in percentage. The bigger picture is to keep these lungs I have for as long as possible before needing new ones. Here’s to hoping Symdeko helps me keep these lungs for as long as possible and that it’s a good journey.
Until next time…