Cough cough cough

Well first of all my side pain is gone! It could have been GI (intestines) related because I did a “clean out” just in case and it seemed to help the pain. It didn’t take it away but it was less. What’s a “clean out” and why did I do it? A “clean out” is when I drink lots of miralax to get the poo moving in case there was a blockage starting. If a blockage gets bad enough it can require surgery. No thank you! So all is well in that area now, thankfully. Continue reading

Coughing Hazard

A few days ago I started having sharp pain in my left lower side at the end of my ribs.  I’m pretty sure I have pulled a muscle or fractured a rib again from coughing.  There’s not much you can do for either except to manage the pain.  Of course coughing hurts like crazy.  I’m trying to master breathing and coughing with my right side only with no luck…haha.  Just kidding.  I might ask for an X-ray at some point if I require more pain management.  I’m trying to just deal with it but it’s annoying.  Just wanted to get this into my blog for my memory, which sucks.  It’s just another part of my reality.  Coughing sucks.

Until next time…

Clinic check up

Today was originally a regular follow up but became an IV check up. All looks good. My weight is down a little from all the antibiotics wreaking havoc on my gut. My FEV1 was down a smidge to 34%/.98L but still around my baseline. I also had a dexa scan (bone density). I have a dexa every 2 years to check my bone health. In 2016 my scan showed osteopenia which is a step before osteoporosis. It just means that my bones are a little weak. With CF I don’t absorb nutrients normally because of my bad pancreas therefore I have to take vitamin and calcium supplements. Continue reading

It’s my birthday!!

Whoop Whoop!!!  I made it to 39!  When I was born the life expectancy was 12 years old. I have a little ways to get to the new life expectancy of 47.5 (I think that is what it is now, it keeps changing).  I got a great birthday present of getting off IVs yesterday.  It was a long 3 weeks of antibiotics.  I am feeling pretty much the same which I will take because I am not worse.  Of course I would like to be better but now since my lung function is low I don’t get much bump from antibiotics but I maintain.  I have a clinic appointment next week.  I’ll update after that appointment to let you all know what my lung functions look like and what the doc says.

Until next time…

Changing IV antibiotics

I’ve been on IV’s for 13 days with no real improvement.  I called my nurse to discuss changing antibiotics since I’m not feeling any better.  We decided on IV Zoysn every 6 hours and oral Bactrim three times a day.  I usually get an upset stomach and (TMI) loose stools with these two meds so I will need to take probiotics to try and help that.  I will be on these two new antibiotics for two weeks with the hopes that I will start to feel better.  We had to look at my sensitivities from my sputum culture to figure out what drugs should work and these two were the winners.  Oh joy!

Until next time…

Clinic appointment

I have been really short of breath and coughing more so I made an appointment with CF clinic.  Today was the day.  I did lung functions and they were actually up since I was last seen in November.  My FEV1 was 37%/1.05L.  I decided to do IVs in hopes of that I caught whatever this is before it got bad.  I will be on cefapime every 8 hours and amikacin every 24 hours and have labs twice a week.  I have a follow up appointment on February 7th.

Until next time…