CF Happens

Sometimes in life, CF happens…pun intended.

recent posts

Category: Blog Life

  • CF Clinic, Power Port, Grief

    Yesterday (5/5/16) was good ol CF clinic.  Nothing spectacular to report there really in the sense that we didn’t change anything or add any extra tests.  My PFTs (lung functions were) basically the same.  My FEV1 was .93 L/ 31%.  My first 2 attempts were identical at .89 L/ 30%.  If I were a healthy…

  • 2 appointments today

    Today was a busy fun filled day at UT hospital for 2 doctor appointments.  Ok, it wasn’t so fun filled but it sure was a long one.  It was about 7 hours today.  I had a big lapse of time between appointments which I spent in the cafeteria having some lunch and watching a movie…