CF Happens

Sometimes in life CF (Cystic Fibrosis) happens…pun intended

recent posts

Category: CF Happens

  • Well that didn’t last long

    I waved to white flag this morning and contacted my CF nurse to ask for antibiotics and prednisone. Sunday I woke up with a bad headache at 4am. It was on the top of my head and in my forehead. My sinuses in my forehead are basically non existent now possibly from all the surgeries…

  • 3 Month CF Clinic Check Up (and a little extra CF education)

    I had CF clinic today. It was the first time I’ve been seen since I was in the hospital in July with really bad asthma issues. My lung functions were up today. My FEV1 was 34%/.93L. They were 29% in July. My baseline is around 32%, so I’ll take 34%!! My weight was down a…