I haven’t been feeling great for at least a week if not more. I kept holding off calling/emailing my CF team because I was hoping it would “pass,” yeah I’m just a little stubborn. I sent the “white flag” email on Sunday. Some would like to call it the “Sunday surrender.” haha. Continue reading
Yesterday was surgery day for my gallbladder removal. My gallbladder has been bothering me for a few months if not longer. I had lots of gallstones per the ultrasound. On the ultrasound, it was also constricted like it does when you are eating when it wasn’t supposed to be because I hadn’t eaten for at least 8 hours. Then was the hyda scan which is where they inject a nuclear substance through IV and wait for it to get into your system so they can see the things they need to see. The hyda scan took longer than it should have because my gallbladder was playing hide and seek, it wasn’t showing up within the hour like it should have. I had to go back for more scans/pictures an hour later and if it hadn’t shown up so slightly at that point I would have had to wait 3 more hours! Thankfully my gallbladder showed up ever so slightly but good enough to show that it wasn’t cooperating. When I saw the surgeon 2 days later there was no debate, it was coming out. Continue reading
6:15am came really early since I couldn’t sleep last night. I finally went to sleep around 2:30pm. My sleep is all jacked up from the 6 hour time change back to eastern time. I will be taking a nap after I update you all. Continue reading
Well I survived the trip…hahaha. I had a great time with my family and celebrating my great uncles 90th birthday. We went to 7 or 8 beaches, I lost count. Another one of my must haves when in Hawaii is shave ice, we got shaved ice 5 times, yummy! No it is not a snow cone…it’s completely different. It is shaved ice from an ice block, not ice pellets. Anyway that is your Hawaiian lesson for the day…haha. Continue reading
I had CF clinic today for a regular check up. Nothing seems to be regular about me anymore when it comes to CF and my depression….but anyway. My weight is just fine and on the high-end of fine. I’m not a fan but that doctors like it. Dang medicines making me gain weight. I might end up being one of those “fat” CFers. Well I already feel that way but on to the next subject. Continue reading
I had an MRI on December 22nd and didn’t hear anything until after the holidays. The results are that I have a minimal C6-C7 impingement (pinched nerve) in my neck. There was nothing of significance in my upper back to give reason for my lung/chest pain on the MRI. The lung/chest pain is most likely from pulled muscles from coughing so much and so forcefully. I am awaiting a referral to a neurosurgeon for the pinched nerve in my neck. I have had the pain in my neck along with headaches for about 6 months. I’m happy to have an answer about my neck but bummed that we really don’t have any concrete answer about my lung/chest pain. The lung/chest pain is slightly better, especially the fractured rib site, than it was when it began. Now it seems that the rest of my muscles in my chest are sore from compensating for the pain which is no fun. I see a neurosurgeon on a February 2nd about the pinched nerve. More on that later.
I spent the day at the hospital with 2 different appointments. First up was my CF clinic check up from my 21 day course of IVs. My main complaint today was the continued pain in my right side. My appointment was at 9:30am and I was finished at 12pm. A lot of people complain about waiting at doctors offices. I, on the other hand, am used to it. It is par for the course when you have CF (or any other chronic illness). I respect that my doctors and nurses take their time with their patients because that means they will give me all the time I need when it is my turn. My appointments are also long because I have to see other people during the visit, i.e.; respiratory therapist, dietitian, social worker, nurse, nurse practioner and/or doctor. I am now a professional “waiter” by this stage in my life. Continue reading