CF Happens
Sometimes in life CF (Cystic Fibrosis) happens…pun intended
Category: Transplant Talk
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(This may be information overload but I always try to explain things so they are easier to understand so bear with me) I had a Telehealth follow up with my CF nurse practitioner last Thursday. We decided that I was good to be done with IVs and to finish the prednisone taper. I did my…
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Now that I am actually getting to the point of listing it is sinking in how sick I really am. I am sleeping about 12-15 hours a day and even more if I take a nap. You may say how is that possible or wonder why I am sleeping so much. My body is very…