Category: Transplant Talk

  • (This may be information overload but I always try to explain things so they are easier to understand so bear with me) I had a Telehealth follow up with my CF nurse practitioner last Thursday. We decided that I was good to be done with IVs and to finish the prednisone taper. I did my…

  • Now that I am actually getting to the point of listing it is sinking in how sick I really am.  I am sleeping about 12-15 hours a day and even more if I take a nap.  You may say how is that possible or wonder why I am sleeping so much.  My body is very…