Tag Archives: birthday

Happy birthday to me…I’m 43!!

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My 43rd birthday was yesterday. February 1st should be a national holiday by now! Haha

I absolutely love my birthday. I know most women don’t like getting older but I’m not most women. Getting older is a blessing a lot of people take for granted.

Life expectancy numbers have never really worried me. It’s just a number. When I was born the life expectancy was around 12. Now for CF patients that were born between 2017-2021 the life expectancy is 53!!! There are now many more treatments and medications for CF including the revolutionary modulators like Trikafta that works on the cellular level. Research for CF is so important to extend the lives of those with CF. Finding a cure for CF is the ultimate goal. The CF Foundation has more than 70 chapters in the United States. Their slogan is “make CF stand for Cure Found.” You can go to http://www.CFF.org to find a local chapter or to donate to the cause. You can also find a Great Strides walk close to you. You can start a team or be an individual walker. Great Strides is the biggest fundraiser for the CFF.

Thank you for always checking in on me and for all the prayers and positive thoughts. Just remember that growing old is a blessing that isn’t offered to everyone.

Until next time…

I’m 40!!!

Posted in Blog Life, Health update by

I turned 40 on Saturday the 1st!!!  Go me for hitting a milestone in life with CF.  When I was born the life expectancy was 12.  It is now 37.5, I believe.  So to say it’s a milestone that I made it to 40 is maybe an understatement.  I am just so excited to be a 40 year old who happens to have CF and is still kicking butt and taking names! Continue reading →

Happy 37th birthday to me!!!

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Today is a happy day because we get to celebrate me, of course!  Yes, I LOVE getting older because it means I kicked CFs butt for another year.  On the flip side it is hard day without my mom here.  I thought after last year this year would be easier.  Considering I was in the hospital last year and it was the first one without mom here.  I have been doing nothing but crying most of the day thinking about mom.  She would call me at 3:05pm, the time I was born, on my birthday every year.  There were some years that she couldn’t wait that long and would call in the morning and then call back at 3:05pm.  I miss that phone call of her singing happy birthday to me.  We were VERY close.  I had plans to surprise her on her birthday last year in April but obviously that didn’t happen. Continue reading →

Still alive at 35

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Yesterday I turned 35 years old!  Most women don’t like to celebrate their birthdays, or at least the getting older part.  I, on the other hand, love celebrating getting another year older.  Getting older when you have CF is a blessing because so many with CF don’t get the privilege of getting older.  Statistics aren’t everything because if they were I wouldn’t be here.  When I was born, the “life expectancy” was 12.  Obviously I have surpassed that.  The age of “life expectancy” keeps moving up which is great!  I put “life expectancy” in quotes because I don’t live by those restrictions.  I have lost friends of all ages so that number really means nothing to me.   Continue reading →

IVs, we meet again

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Where to start…..I finished the oral Cipro and prednisone on Friday the 23rd.  Still wasn’t feeling great, although the prednisone helped a ton by opening up my reactive airways making me not so tight chested and wheezy.  Tuesday, the 27th, I started with noticeable lung pain in the upper right lung.  It hurt to cough, good luck not doing that one, and made the vest uncomfortable to use during treatment times but I powered through it because I have to get that junk out.  The lung pain continued yesterday and today.  I called my clinic to ask for a chest x-ray to make sure there wasn’t anything blatantly obvious on it as to a reason for the pain, like a major infiltrate (junk/blood stuck in there), infection, pneumonia, collapsed lung (partial, considering I was still able to breathe decently) or fractured ribs.  I figured it was just do to the raging pseudomonas infection I have going on at the moment.  Continue reading →

Happy Birthday to me!

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Today is my 34th birthday!!!! Not all women are proud to say their age or to say they like getting older. I am a rare breed in that sense. When you throw CF in the mix, getting older is always a blessing. When I was born the life expectancy was around 12 years old. It is now 37.5 years old. It is creeping up there as am I. I am thankful for every year that I have. I am actually looking forward to turning 40 but now I have to wait 6 years…haha.
Continue reading →