Oscar and Oscar II have arrived

Today was an early start.  I had to be at the hospital for labs early because we ha plans to go to Dollywood the amusement park and wanted to be there when it opened at 10am.  So I made to the hospital for labs, stopped for gas on the way back and made it back home by 8:05 am.  We made it to Dollywood around 10:15 am, they opened at 10am.  Our tradition in our family is that we have a family day and/or night before one of us goes away for an extended period of time. My step-son is heading to his mom’s for the summer so that meant a family day was in store.  What I learned today was 1.) handicapped parking when at an amusement park is a life saver 2.) you don’t realize how much lung power you use while riding roller coasters until you are out of breath while riding one 3.) long lines for rides give you time to calm your breathing and regain control of it 4.) your inner thighs get sore from “holding on” and finally 5.) I was right when I said that I could see a lot of coughing from laughter in my day.  We sealed family day by playing a game of Sequence after dinner.  Continue reading

Happy Mother’s Day

Happy Mother’s Day to all the mamas out there!!!  That includes birth, adoptive, step, foster and even those that took on that roll without any title.  My mom is pretty special if you ask me.  My mom sacrificed a lot when I was younger whenever I was sick.  If I was in the hospital she would come to the hospital after work and stay the night.  She would wait until the doctor’s rounded in the morning and head back to work for the day.  We had a good routine going.  The older I got the more freedom I got to be alone at the hospital which was brave of my mom.  I embarrassed her many a times by the things I said to nurses, residents/interns (aka “duckling docs”), RTs and more.  She has stories…hahaha  Continue reading

Holidays here we come!

We are gearing up for a busy family filled few weeks over the holidays.  Family is visiting us in Tennessee for Christmas and New Years this year which means we don’t have to do the 11-12 hour drive back to KC.  We have done that drive quite a bit so it is nice to have a break from it this holiday season.  We are also excited to show them some of East Tennessee as well. Continue reading

What does being sick look like

Once again I have fallen off the radar in some aspects as I do when I get sick.  It is hard for me not to fall off the radar when I’ sick.  I try not to because I know that it worries some.  With that said, I figured I would try to paint a picture of what being sick looks like for me.

First of all, being sick drains me of all energy.  The infection that takes up camp in my lungs is a constant battle.  It is never eradicated, it is just a matter of how active it is and if it is causing me problems.  If we treated me with antibiotics every time I cultured something I would never be off of IVs.  We only treat when I am showing symptoms of an active infection such as increased cough, increased sputum production, change in sputum color (darker/brighter=more infection), sleeping more, get worn out easier, short of breath, wheezing, chest tightness, etc.   Continue reading

Guest on another CF blog

I was emailed by another CFer who has a blog, Inhaling Hope.  She asked if I would like to be a part of her CF Moms section of her blog.  Of course I said yes!  Here is a link to my interview with her.  I think she did great.

http://hopefulwithcf.blogspot.com/2014/04/guest-blogger-shannon.html

There are a lot of great CF blogs out there and I am thankful to be counted amongst them.

Thank you Inhaling Hope!