After 16 days in lock up I am home. It was a long 16 days. The first 10 or so days of my stay I was sick enough that I didn’t care that I was there. Yes of course I wanted to be with my family at home but I knew I needed to be there to get better. On day 7 I had a bronch which was followed by days of a lot of pain and major tightness and wheezing in my airways. So needless to say my asthma went crazy and I had to put up with it and it was NO fun! It took upping prednisone to 80mg per day (40mg in the AM and 40mg in the PM) to get the tightness and wheezing to lessen to a tolerable state. Continue reading
We received preliminary lab reports on the stuff they sucked out during the bronch on Wednesday. Looks like there wasn’t a fungus hanging out in there and just my normal resistant pseudomonas strand and lots of it. I know I said it can take 2-3 weeks for fungus to show up. I should have specified that I meant it takes that long to identify what the fungus is. I’m guessing that things start growing pretty fast in the lab environment and they check it under the microscope often. Bacterial and fungus look different in the pattern they grow so I’m sure they can tell that everything is bacteria at this point. I don’t believe fungus will show up later but I guess you never know and this is me we are talking about. My body NEVER plays by the rules. We have to wait for antibiotic sensitivities to come in over the weekend which will hopefully be over the weekend. Continue reading
The bronch went well yesterday. I was able to come back to my room and not be on the vent so that is a win in my books. They were able to get a lot of junk out and sent off to the lab for testing. Continue reading
One of the pulmonary doctors (Dr. G) came to see me this morning and of course I was still asleep so I had to wake up to talk to him. The result of waking up and sitting up in bed was a massive coughing fit. I guess the good side of all of that is that the doctor got to see my coughing fit in action. He asked if this was how every morning went. In between coughing I said, “yep.” Continue reading
Today was clinic day. If there is one thing CF clinic has taught me over the years, it’s patience. I am used to it so it is no big deal but others would flip if they had to sit in the doctors office for 2.5 hours or more.
I haven’t been feeling the greatest as you know since I started oral cipro and prednisone. I have been on both for 11 days. I have 2 days of prednisone left and 3 days of cipro left. Today’s clinic wasn’t the greatest. First stop was lung functions which were down from last time. This time my FEV1 was 1.37 / 46%. Last time I believe they were 1.47. They aren’t down a ton but they seem to be taking a slow decline. Gotta love having a progressive disease that you have no control over. Continue reading