Clinic appointment

I have been really short of breath and coughing more so I made an appointment with CF clinic.  Today was the day.  I did lung functions and they were actually up since I was last seen in November.  My FEV1 was 37%/1.05L.  I decided to do IVs in hopes of that I caught whatever this is before it got bad.  I will be on cefapime every 8 hours and amikacin every 24 hours and have labs twice a week.  I have a follow up appointment on February 7th.

Until next time…

IVs it is

When I was at CF clinic on the 2nd, I asked for oral antibiotics hoping I wouldn’t need IVs.  Sometimes (not too often anymore) I can get by with orals instead of going straight to IVs.  With my line of drugs that don’t work I’m limited.  Well I had to call them back because my cough and wheeze were still hanging around.  I asked only for a short burst of prednisone hoping it would help.  You guessed it, I had to throw in the towel and ask for IVs because my cough was persistent and the amount I’m coughing up has increased.  I went for lung functions and they were down a little (FEV1 34%/.98L).  When compared to my last set of lung functions they are down 4%. Continue reading

Impromptu clinic day

Well my 2018 has been shitty so far, literal and figuratively speaking.  Not that you cared to know that.  I got that virus around Christmas weekend and it seems to have found a happy home in my body.  I have been super short of breath just walking and even sitting therefore I have been using my oxygen pretty much 24/7, unless it doesn’t reach where I’m going in the house. Continue reading