I coughed up more blood last night and morning, totaling about 1/4 cup if not more. Well we know what that means by now. Yep, another embolism. I went down for the procedure at 10:45am but I didn’t get into the procedure room until 12:40pm. They were so over busy. I made it back to my room around 2:30pm. The best part of getting back to my room was I got the luxury of laying flat for 6 hours! I had to eat laying down. I had to pee into a bed pan laying down. That is something I would rather not have to do ever again. Continue reading
Let’s see….where to start. It’s been 7 days since my power port was placed. I’m healing nicely. There has been minimal swelling and bruising. The most painful part is the incision healing. I have been using ice packs for the swelling and bruising. There is a steri-strip over the incision that will come off when it’s ready. I sure do want to rip it off though, it is making it to where if I move a certain way it pulls and is painful. Continue reading
I was paroled from lock up on Monday the 7th after 12 long days. It seems that every time I’m on the ride back home from the hospital that I notice all sorts of new things along the way. This time it was road construction. The Smokey Mountains are never a new view to me but the drive from the hospital to our house has one of the best views of the mountains and I am always in awe of them. Never fails, it’s my favorite drive with the best view. It’s home to me. Continue reading
I finished IV antibiotics last night. It’s been a long 5.5 weeks of multiple antibiotics. Doing IVs is second nature now after all these years. I’m very organized so I always have things set up to make IVs easier to weave into my regular schedule.
Final dose! Continue reading
I finally had my GYN appointment yesterday and had a vaginal ultrasound this morning to check things out. Man was I excited for the later of that last sentence. haha I have been having the typical symptoms of a cyst some of which are nausea, bloating, painful “other actions,” (if you catch my drift) and obviously abdominal pain/cramping. Continue reading
DISCLAIMER: Men (if there are any that read this blog of mine that is) this may or may not have a little TMI and talk of girlie stuff with a side of CF.
I have mentioned before how my periods affect my lungs every month. Well this month my “lady parts” decided to go off on a tangent and not obey the rules at all. I am not a fan of “lady parts,” or at least my internal “lady parts.” Let me explain why I dislike them so much. I promise there is a little bit of CF in this post too. Continue reading
Today was a good day and a good clinic day at that. First stop is always the scale, everyones favorite thing. I have been keeping my weight up which is a good thing medically speaking but not so good in the clothes department. I have gained 12 pounds since January, 4 of which have been since last month. There is a lot of yoga, sweatpants and other workout gear being worn around here. Mind you, there is no “working out” going on here except shoving myself into my skinny jeans/non stretchy shorts and “fitted” tank tops. Of course there is the real exercise going on at Physical Therapy for my shoulder, which is getting much better by the way, but that is it. hahaha Continue reading
Navarre Beach, FL Continue reading
Nine days of IVs down…?? more days to go. When the port is accessed you are supposed to change the needle weekly. It’s not the end of the world if it doesn’t get changed on the exact day. It is also good to give your skin a break from the tegaderm that covers your needle. The major perk is being able to take a REAL shower which means not having to sponge bathe and wash my hair over the side of the tub. I deaccessed my port this afternoon after my 2pm dose. I was due to change my needle on Friday but I wasn’t motivated to do it. Then Saturday I slept most of the day. I just finished with my real shower and I’m now doing a treatment. When I’m finished with my treatment I’ll reaccess my port in time to do my next dose. Continue reading
I have a ton of different things on my mind and I don’t know that I can wait to make them in different posts…haha I’ll see what I can accomplish in this one without confusing you, hopefully that is. Continue reading