Embolization #2 (hoping it’s the last)

I coughed up more blood last night and morning, totaling about 1/4 cup if not more.  Well we know what that means by now. Yep, another embolism.  I went down for the procedure at 10:45am but I didn’t get into the procedure room until 12:40pm. They were so over busy. I made it back to my room around 2:30pm. The best part of getting back to my room was I got the luxury of laying flat for 6 hours!  I had to eat laying down. I had to pee into a bed pan laying down. That is something I would rather not have to do ever again. Continue reading

A little of this and a little of that

Let’s see….where to start.  It’s been 7 days since my power port was placed.  I’m healing nicely.  There has been minimal swelling and bruising.  The most painful part is the incision healing.  I have been using ice packs for the swelling and bruising.  There is a steri-strip over the incision that will come off when it’s ready.  I sure do want to rip it off though, it is making it to where if I move a certain way it pulls and is painful.   Continue reading

Hodgepodge post coming at ya

I was paroled from lock up on Monday the 7th after 12 long days.  It seems that every time I’m on the ride back home from the hospital that I notice all sorts of new things along the way.  This time it was road construction.  The Smokey Mountains are never a new view to me but the drive from the hospital to our house has one of the best views of the mountains and I am always in awe of them.  Never fails, it’s my favorite drive with the best view.  It’s home to me. Continue reading

Long 6 weeks of IVs

I finished IV antibiotics last night.  It’s been a long 5.5 weeks of multiple antibiotics.  Doing IVs is second nature now after all these years.  I’m very organized so I always have things set up to make IVs easier to weave into my regular schedule.

Final dose!  IMG_4740 Continue reading

Update on the innards (aka lady parts)

I finally had my GYN appointment yesterday and had a vaginal ultrasound this morning to check things out.  Man was I excited for the later of that last sentence.  haha  I have been having the typical symptoms of a cyst some of which are nausea, bloating, painful “other actions,” (if you catch my drift) and obviously abdominal pain/cramping. Continue reading

“Lady parts”

DISCLAIMER: Men (if there are any that read this blog of mine that is) this may or may not have a little TMI and talk of girlie stuff with a side of CF.

I have mentioned before how my periods affect my lungs every month.  Well this month my “lady parts” decided to go off on a tangent and not obey the rules at all.  I am not a fan of “lady parts,” or at least my internal “lady parts.” Let me explain why I dislike them so much.  I promise there is a little bit of CF in this post too. Continue reading

October CF Clinic update

Today was a good day and a good clinic day at that.  First stop is always the scale, everyones favorite thing.  I have been keeping my weight up which is a good thing medically speaking but not so good in the clothes department.  I have gained 12 pounds since January, 4 of which have been since last month. There is a lot of yoga, sweatpants and other workout gear being worn around here.  Mind you, there is no “working out” going on here except shoving myself into my skinny jeans/non stretchy shorts and “fitted” tank tops. Of course there is the real exercise going on at Physical Therapy for my shoulder, which is getting much better by the way, but that is it.  hahaha Continue reading