Cough cough cough

Well first of all my side pain is gone! It could have been GI (intestines) related because I did a “clean out” just in case and it seemed to help the pain. It didn’t take it away but it was less. What’s a “clean out” and why did I do it? A “clean out” is when I drink lots of miralax to get the poo moving in case there was a blockage starting. If a blockage gets bad enough it can require surgery. No thank you! So all is well in that area now, thankfully. Continue reading

Coughing Hazard

A few days ago I started having sharp pain in my left lower side at the end of my ribs.  I’m pretty sure I have pulled a muscle or fractured a rib again from coughing.  There’s not much you can do for either except to manage the pain.  Of course coughing hurts like crazy.  I’m trying to master breathing and coughing with my right side only with no luck…haha.  Just kidding.  I might ask for an X-ray at some point if I require more pain management.  I’m trying to just deal with it but it’s annoying.  Just wanted to get this into my blog for my memory, which sucks.  It’s just another part of my reality.  Coughing sucks.

Until next time…

3 weeks of IVs complete

I finished 3 weeks of IVs earlier this week.  I do feel better than I did BUT I’m still having coughing attacks.  I’m attributing it more to asthma though.  I was offered prednisone at clinic on Friday (yesterday) but I declined for the time being.  I’m going to hold off and see if treatments and such can help.  We all know how much I love prednisone, NOT!  My lung functions were the same at FEV1 .96L/34%.  My first two attempts were 33% and my last one was the 34%.  I will follow-up in 6 weeks. Continue reading

Depression really sucks

I am officially off the Effexor and it has not been easy.  I am experiencing what are called “brain zaps.”  It is really like your brain goes “bzzz zzzz zzz.”  It is very annoying and makes me want to scream.  My body is sore.  The commercials that say “depression hurts” are the truth.  It doesn’t help right now that I am on Levaquin that causes joint and muscle pain.  It’s a double whammy. Continue reading

Change on the horizon…hopefully good

I saw my psych doctor today to talk about my depression and anxiety.  My antidepressants aren’t helping anymore.  I’m on Effexor and have been for many years and it’s not working for me anymore.  We are going to wean me off the Effexor and starting Trintellix (a newer med).  It’s not going to be an easy time weaning off the Effexor because I have been on it so long.  I pray that it is an easy transition onto the new med.  I need a break through.  I deserve a win in this one. Continue reading

CF is not my friend today

We took a short road trip to Panama City, FL to see some good friends this past weekend. We were able to go to the beach on Saturday.  I realized my happy place, the beach, is hard for me to get to with all the walking.  I had to take breaks walking the boardwalk and then on the beach.  Once I got to our spot to sit I was ok just sitting and enjoying the sand and surf.  I went in the water and that wore me out as well.  Holding myself steady in the waves was hard and took my breath away.   With all that said the beach is still my happy place even though it is hard on me now.  I want to be able to travel and not have to worry about getting out of breath, coughing, breathing treatments, etc. Continue reading