Today was originally a regular follow up but became an IV check up. All looks good. My weight is down a little from all the antibiotics wreaking havoc on my gut. My FEV1 was down a smidge to 34%/.98L but still around my baseline. I also had a dexa scan (bone density). I have a dexa every 2 years to check my bone health. In 2016 my scan showed osteopenia which is a step before osteoporosis. It just means that my bones are a little weak. With CF I don’t absorb nutrients normally because of my bad pancreas therefore I have to take vitamin and calcium supplements. Continue reading
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Progression…may as well be a curse word
(Kind of a ramble…sorry) It is day 11 of IV antibiotics. I felt horrible over Thanksgiving and the weekend. My husband was sick last Monday and Tuesday as well. We were no fun last week, that’s for sure. We had Thanksgiving lunch in our PJs and watched Netflix and football. My husband is back to his healthy self, thank goodness. When my husband came up sick, we thought it best to cancel my sisters trip here for the holiday. We didn’t need to subject my sister, nieces and nephew to all the germs in our house. We sure missed having them here for the few days. The worst part is hearing that my oldest niece was crying and upset because she couldn’t come see aunt Shannon. That broke my heart. Of course, I am now thinking of when we can get a visit arranged ASAP. She said she wants to come here for her birthday. I agreed that was a great idea! Spring break in Tennessee!! Whoo hoo!!! Continue reading
So what was in there
We received preliminary lab reports on the stuff they sucked out during the bronch on Wednesday. Looks like there wasn’t a fungus hanging out in there and just my normal resistant pseudomonas strand and lots of it. I know I said it can take 2-3 weeks for fungus to show up. I should have specified that I meant it takes that long to identify what the fungus is. I’m guessing that things start growing pretty fast in the lab environment and they check it under the microscope often. Bacterial and fungus look different in the pattern they grow so I’m sure they can tell that everything is bacteria at this point. I don’t believe fungus will show up later but I guess you never know and this is me we are talking about. My body NEVER plays by the rules. We have to wait for antibiotic sensitivities to come in over the weekend which will hopefully be over the weekend. Continue reading
CF Happens 