3am = coughing up blood time I guess. I coughed up about 15-20 cc. My CF Doctor came to see me around 8am and decided he wanted to do a bronch to see where the blood was coming from. I went down for the bronch at 9:15am and I was back in my room by 11:30am. He said he didn’t see any active bleed areas. His next thought was that it was drainage from my sinuses/nose. He looked and said he saw some blood there. Continue reading
Tag Archives: club med
Hodgepodge post coming at ya
I was paroled from lock up on Monday the 7th after 12 long days. It seems that every time I’m on the ride back home from the hospital that I notice all sorts of new things along the way. This time it was road construction. The Smokey Mountains are never a new view to me but the drive from the hospital to our house has one of the best views of the mountains and I am always in awe of them. Never fails, it’s my favorite drive with the best view. It’s home to me. Continue reading
Yep, that’s my luck
My first night in lock up….in CCU/ICU was as expected, NO SLEEP and constant flow of people in and out. If I totaled up my “sleep” from last night, I would have to guess I got about 2 hours. At 3am I had labs drawn, a chest X-ray taken and nasal swabs. Why at 3am? Your guess is as good as mine. They were completed nonetheless. Earlier in the night I had an EKG along with my first set of nasal swabs. Hahaha. Yesterday was brought to you by the number 2. I’ll explain; 2 sticks to get a peripheral IV for the chest CT with contrast, 2 sticks for a blood gas, 2 sticks to get my port accessed, 2 sticks from the lab tech for blood cultures since they have to be from 2 different sites, 2 sets of nasal swabs. There may have been more of the terrible twos but due to my lack of sleep, I can’t remember. Oh who am I kidding, my memory sucks and everyone knows that. Hahaha Continue reading
Hello lock up….again
Today was CF clinic day for follow up from the hospital 2 weeks ago. Since getting out of the hospital the pain in my right front side has not gone away nor lessened. I’m still very worn out and out of breath. Definitely not better by any means. Continue reading
One month ago today…
(This post is bound to be all over the place so bear with me) One month ago today my mom left this earth. I feel like I have been treading water for the last month just trying to stay afloat. I am an emotional mess at times when the memories flood in or something triggers the overwhelming feeling of not having my mom here anymore. Continue reading
Day 13…lonely
Today is day 13 in lock up. I slept a lot of today since I sleep in spurts as it is at night. I had the parade of doctors as usual this morning. 2 pulmonary docs and an infectious disease doc. Continue reading
Hard nights make for so so days
CF doc came in around 2pm (smart man coming in after noon). I always feel better when they come in. I made sure that they have final say on any and all things that are changed and/or added for my treatment while in here because I see so many different doctors while inpatient. I am happy to report that they do indeed have final say. He told me not to worry about that. Continue reading
So what was in there
We received preliminary lab reports on the stuff they sucked out during the bronch on Wednesday. Looks like there wasn’t a fungus hanging out in there and just my normal resistant pseudomonas strand and lots of it. I know I said it can take 2-3 weeks for fungus to show up. I should have specified that I meant it takes that long to identify what the fungus is. I’m guessing that things start growing pretty fast in the lab environment and they check it under the microscope often. Bacterial and fungus look different in the pattern they grow so I’m sure they can tell that everything is bacteria at this point. I don’t believe fungus will show up later but I guess you never know and this is me we are talking about. My body NEVER plays by the rules. We have to wait for antibiotic sensitivities to come in over the weekend which will hopefully be over the weekend. Continue reading
Bronchs are not fun
The bronch went well yesterday. I was able to come back to my room and not be on the vent so that is a win in my books. They were able to get a lot of junk out and sent off to the lab for testing. Continue reading
Let’s see what’s going on in there
One of the pulmonary doctors (Dr. G) came to see me this morning and of course I was still asleep so I had to wake up to talk to him. The result of waking up and sitting up in bed was a massive coughing fit. I guess the good side of all of that is that the doctor got to see my coughing fit in action. He asked if this was how every morning went. In between coughing I said, “yep.” Continue reading
CF Happens 