Life Update-Air Force Retirement

I don’t write much about my family but this is a big update!  My husband is retiring from the Air Force after 20 years service today.  I can’t begin to tell you how proud I am of him and all he has done for our country and our family. 20 years of service is a great accomplishment in the Air Force, and in any military branch. He has done our country a major service that comes with a lot of stories for generations to come. Continue reading

Hawaii

Well I survived the trip…hahaha.  I had a great time with my family and celebrating my great uncles 90th birthday.  We went to 7 or 8 beaches, I lost count.   Another one of my must haves when in Hawaii is shave ice, we got shaved ice 5 times, yummy!  No it is not a snow cone…it’s completely different.  It is shaved ice from an ice block, not ice pellets.  Anyway that is your Hawaiian lesson for the day…haha. Continue reading

Friends and Family

What to do when you are woken up and you can’t get back to sleep….you get up and blog about what is on your mind.  Friends and family have been on my heart and mind for a while.  The sicker that I get the more I think about them and what they may be feeling.  Family is “stuck” with me but that doesn’t mean they have to deal or even claim my CF. They can love me from afar and still be my family even if they don’t want to acknowledge  my CF or even remember.  It is easy to ‘forget’ that I have anything since we are states away from one another and we don’t see each other daily or even weekly or monthly, sometimes going longer without talking to each other as well. Continue reading

Hawaii – Mom’s happy place

We recently got back from Hawaii (Honolulu, Oahu).  The purpose for the trip was to spread my mom’s ashes in her favorite place on earth.  She wanted to be in Hawaii forever and ever.  We chose to spread her ashes in front of Duke’s restaurant on Waikiki beach, mom’s favorite restaurant.  It was a very special time but also surreal and will forever be a memory in my heart. Continue reading

Trip to KC

This is probably going to be ALL over the place so bear with me and enjoy the ride…haha  Let me pick up after my last clinic appointment…

We headed to Kansas City the last weekend of July/first weekend of August for my husbands 20 year high school reunion.  It stated off as a super short trip.  Flying in on Friday afternoon and flying home Sunday morning.  I decided to change my return flight so I could stay in KC to help my mom after her most recent hospital stay and to squeeze in helping my dad get situated in their new house.  I also set up as many lunch/dinner dates and “swing by” visits that I could with friends.  Since we aren’t back in KC that often we try to squeeze everything in that we can.  I never want to sound like I’m royalty or sound snooty by saying that “there is one of me/us and lots of you,” meaning we wish we could see everyone but that’s a lot of people!  Therefore I/we try to set up a central place for lunch, dinner or drinks and say this is where I/we will be if you are wanting to see us/me.  I have a hard time saying it that way because I don’t want anyone to take it as though I think I think I am better than someone and that everyone else’s time doesn’t matter because it does.   Continue reading

Happy Mother’s Day

Happy Mother’s Day to all the mamas out there!!!  That includes birth, adoptive, step, foster and even those that took on that roll without any title.  My mom is pretty special if you ask me.  My mom sacrificed a lot when I was younger whenever I was sick.  If I was in the hospital she would come to the hospital after work and stay the night.  She would wait until the doctor’s rounded in the morning and head back to work for the day.  We had a good routine going.  The older I got the more freedom I got to be alone at the hospital which was brave of my mom.  I embarrassed her many a times by the things I said to nurses, residents/interns (aka “duckling docs”), RTs and more.  She has stories…hahaha  Continue reading

Happy New Year!!

Happy New Year everyone!!!  As far as 2014, I could have done without so many IVs but hey I wasn’t in the hospital at all in 2014 so for that I am thankful.  I am excited to see what 2015 brings.  I hope it brings longer spans of time between IVs for one.  Secondly, I hope that I can keep my running streak of no “lock up/Club Med/hospital stay” going, 18 months and counting.  Continue reading