CF Awareness Month: All things gut related

The gut (belly/bowel/intestines) are greatly affected by CF.  There are a lot of issues that can come up. Like I have said before, not all CFers have the same symptoms and problems, nor do they have them at the same rate/severity. I am going to add some pictures to help describe all of these gut related this.  The pictures will help describe some of the different aspects of these areas that are affected.  I have included information about feeding tubes because maintaining weight is something many pancreatic insufficient CFers deal with.  We have to keep the weight on so that we can fight infections. Continue reading

Surgery Roll Call

I thought I would share my surgery history. Surgeries come with the CF territory. Some people start life with a surgery and others don’t have any for a long time, depends on the person.

I have had multiple sinus surgeries, I have lost count. My first sinus surgery was when I was 10 and my last was when I was 21. I did have one a year for awhile. During the sinus surgeries they clean out all the infection and polyps (basically a growth in the sinus) that have formed. They also have had to drill holes in the sinuses to help them to drain. Your sinuses are just holes in your head. They are not like lungs that are a sack. Sinus surgery is painful but pays off in the long run. When you have lots of thick bacteria infested mucus in your sinuses it can infect your lungs. The lungs and sinuses like to share with each other therefore it is best to get the sinuses checked out. Some children have been referred and later diagnosed with CF after being seen by an Ear, Nose and Throat doctor due to having polyps in their sinuses. Polyps are very common in people with CF. Sinus irrigation is common practice for people with CF. It is good to rinse as much out as possible and hope that you don’t have to have surgery.
Continue reading