I had CF clinic today for a regular check up. Nothing seems to be regular about me anymore when it comes to CF and my depression….but anyway. My weight is just fine and on the high-end of fine. I’m not a fan but that doctors like it. Dang medicines making me gain weight. I might end up being one of those “fat” CFers. Well I already feel that way but on to the next subject. Continue reading
I had a chest CT yesterday. It showed a few new spots/infiltrates which are infection but generally speaking it is stable-ish from my last chest CT, no major changes just subtle changes.
I haven’t been feeling good for a week or more. Mornings are the worst, as usual, but once I get moving and do my morning breathing treatment it is more tolerable in general. I have been having my usual symptoms of an exacerbation; increased cough, increased sputum, increased fatigue, increased pain on my right side of my chest, increased over all blah feeling.
All of that means that I am the winner of IVs for the next 21 days/3 weeks!! I will be on Colistin (IV push) every 12 hours and Zosyn (IV ball) every 6 hours. IVs take a lot out of me so I will be worse before I’m better. Hopefully this means I will be good to go for our busy house full over Christmas. They are drawing fungal labs to verify if there is anything fungal could be the culprit. I will be seeing my CF team again on December 15th. I will be having a repeat chest x-ray a few days before that to see if there are any changes. I’m starting the IVs tonight but will only get 1 dose of each medicine in tonight. 21 days of IVs should be December 8/9.
Until next time…
I overcame the lung pain and it finally dulled by Sunday to where it only really hurt if I was taking a deep deep breath. My morning have been pretty bad. Mornings in general are my worst time of the day as far as coughing and sputum production go. Sitting up after laying flat during the night stirs up all of the junk that has settled and the coughing starts. I have always said that mornings are NOT my friend. If I had a way to skip them I would. It hurts my lungs/chest and head along with making me out of breath. I have to catch my breath and try not to cough so I can walk to the office to do a breathing treatment without running into walls or even peeing myself when trying to walk and cough at the same time. Yep, that’s the real stuff right there. Continue reading