Hello friends and family! Seems like I was just here updating you all. Well I am not feeling good again after only 2.5 weeks off of IVs. I started with the dry unproductive cough again which was what happened before I was hospitalized at the end of March. Along with achy and my chest is sore from all the coughing. Plus I still have the pulled muscle on the left side of my chest which seems worse the last few days. It hurts so bad to cough. I’ve been trying to brace myself when I cough but that doesn’t even help. It’s like something is stabbing me every time. Continue reading
I’ve been on IV’s for 13 days with no real improvement. I called my nurse to discuss changing antibiotics since I’m not feeling any better. We decided on IV Zoysn every 6 hours and oral Bactrim three times a day. I usually get an upset stomach and (TMI) loose stools with these two meds so I will need to take probiotics to try and help that. I will be on these two new antibiotics for two weeks with the hopes that I will start to feel better. We had to look at my sensitivities from my sputum culture to figure out what drugs should work and these two were the winners. Oh joy!
Until next time…
I started having viral symptoms on the 22nd)…fevers, body aches, chills, horrendous cough, horrible chest pain from all the coughing, shortness of breath, etc. I finally had enough yesterday and had to go to the ER. There was no CF clinic for me to be seen in this week so ER it was. I tested negative for the flu which I was exposed to. My chest X-ray showed no changes and no pneumonia, all good there. Labs showed that my white count was elevated so my body was definitely fighting something. I was started on IV Zosyn and oral Levaquin. I didn’t get to my room until 9pm. I did lung functions while in the ER and my FEV1 was down 10% to 28%. That’s a decent drop. This virus or whatever it is a doozy. Continue reading
Just a short update: I finished 21 days of IV Aztreonam on Monday. The Levaquin was not extended which I am grateful for. It causes me lots of arthritic pain and makes moving around painful in my joints, all over. As for how I’m feeling now…I’m decent enough. I still have a dry sounding productive cough. I will keep an eye/ear on it. Continue reading
Yesterday was surgery day for my gallbladder removal. My gallbladder has been bothering me for a few months if not longer. I had lots of gallstones per the ultrasound. On the ultrasound, it was also constricted like it does when you are eating when it wasn’t supposed to be because I hadn’t eaten for at least 8 hours. Then was the hyda scan which is where they inject a nuclear substance through IV and wait for it to get into your system so they can see the things they need to see. The hyda scan took longer than it should have because my gallbladder was playing hide and seek, it wasn’t showing up within the hour like it should have. I had to go back for more scans/pictures an hour later and if it hadn’t shown up so slightly at that point I would have had to wait 3 more hours! Thankfully my gallbladder showed up ever so slightly but good enough to show that it wasn’t cooperating. When I saw the surgeon 2 days later there was no debate, it was coming out. Continue reading
6:15am came really early since I couldn’t sleep last night. I finally went to sleep around 2:30pm. My sleep is all jacked up from the 6 hour time change back to eastern time. I will be taking a nap after I update you all. Continue reading
I have not been feeling good for about 3 or so week, maybe more. I did the 2 weeks of IVs 2 weeks ago and wasn’t much better but that is probably due to the fact that my pseudomonas is multi drug resistant. We are limited on what will “work” on the stubborn drug resistant bug (pseudomonas) in my lungs. I made the dreaded call after the 4 days of 40mg of prednisone and no improvement. I need something more therefore I had to call with all the I have coming up. I have a busy 5 weeks ahead. Next weekend we are going to the Zac Brown Band Concert, a bucket list item for myself. Then I have a girls trip to the Gulf Shores the next week. Then in 5 weeks we have our good friends wedding weekend. Continue reading