I remember when I could do a lot of things that I am unable to do now. Unfortunately, that is only going to get worse as time goes on and my lungs get worse. It is a major mind trip when you want to do things but your body won’t let you or your mind won’t let you because it knows your body can’t. If that makes sense. Continue reading
I saw my surgeon for my follow-up from gallbladder surgery and everything is good. All healed up! Not having the pain from having a bad gallbladder is great! I’ve known it needed to come out for a while now, I just needed it to finally act up. I told the surgeon the only thing left to take out is my appendix and these crappy lungs…hahaha. Continue reading
Yesterday was surgery day for my gallbladder removal. My gallbladder has been bothering me for a few months if not longer. I had lots of gallstones per the ultrasound. On the ultrasound, it was also constricted like it does when you are eating when it wasn’t supposed to be because I hadn’t eaten for at least 8 hours. Then was the hyda scan which is where they inject a nuclear substance through IV and wait for it to get into your system so they can see the things they need to see. The hyda scan took longer than it should have because my gallbladder was playing hide and seek, it wasn’t showing up within the hour like it should have. I had to go back for more scans/pictures an hour later and if it hadn’t shown up so slightly at that point I would have had to wait 3 more hours! Thankfully my gallbladder showed up ever so slightly but good enough to show that it wasn’t cooperating. When I saw the surgeon 2 days later there was no debate, it was coming out. Continue reading
We had a fantastic fundraiser yesterday. We played singo which is like bingo with song titles. You listen to 30 seconds-1 minute of a song and if you have that song on your singo card you mark it off. You get a singo with 5 in a row like bingo. Winners received gift cards to the restaurant where the event was held. Next up was trivia. That was a lot of fun as well. The winners also won gift cards which were donated. We also had 16 raffle baskets, one of which was custom made cornhole boards. I’d say you had lot of fun things to do yesterday.
We had a great turn out showing lots of love and support. It was greatly appreciated. I had set a goal for myself of $1000. Well that was surpassed twice. We raised just over $3000!!!
The money will go to the specific savings account we have set up for the lung fund to help cover medical costs now and for the future transplant costs.
We are truly humbled by the outpouring of love and support shown to us. Thank you so very much for every donation.
Until next time…
6:15am came really early since I couldn’t sleep last night. I finally went to sleep around 2:30pm. My sleep is all jacked up from the 6 hour time change back to eastern time. I will be taking a nap after I update you all. Continue reading
Well I survived the trip…hahaha. I had a great time with my family and celebrating my great uncles 90th birthday. We went to 7 or 8 beaches, I lost count. Another one of my must haves when in Hawaii is shave ice, we got shaved ice 5 times, yummy! No it is not a snow cone…it’s completely different. It is shaved ice from an ice block, not ice pellets. Anyway that is your Hawaiian lesson for the day…haha. Continue reading
I had a CF clinic check up yesterday and all is good. My lung functions are up 3% to 36% from 33%. They said I sounded good and looked good. My BMI is great at 24, yes I have some extra weight to help fight off infection. When I’m sick I can lose weight fast because your body takes the calories you take in to fight off infection. Not that I feel comfortable with the extra weight but everyone says, “you look so good,” so I’ll take it I guess. If the extra weight helps me stay “healthy” (whatever that is) I try to deal with it the best I can. Continue reading