The Last 6 Days…

This is what the last 6 days have looked like to me…

Thursday, August 3rd:  My nurse called and said my kidney level (creatinine) was up today when I had my bi-weekly labs drawn. So I’m at the ER getting checked in then getting admitted. The plan is to get me hooked up to fluid to help flush out my kidneys. It’s not as high as it was the last time I was admitted for acute kidney failure which is good that we caught it. The reason my kidney level is high is from the antibiotics that are filtered through my kidneys. Sometimes the kidneys take a hit. I’ll keep you all updated.

Update: I’m finally in a room!! While in the ER I had a chest X-ray taken, ultrasound of my kidneys and bladder done, the ER doc saw me along with the pulmonary fellow, pain meds for this stupid rib pain. The rib pain is much worse today. I was coughing and felt something pop, not good. But with all that said I’m finally in my room and after my nurse and respiratory therapist are done I’m hoping to get some much needed sleep.

Day 2 UPDATE: I’m counting yesterday as day 1 even though I wasn’t here all day. Anywho, I tried to sleep as much as possible last night and today. My pulmonary doctor came to see me and he said my X-ray didn’t show anything broken so we agreed that it is one hell of a pulled muscle. Ouch!!!!! My other CF doc ordered lung functions which I found funny with this pain. I made them happy and attempt them. I got 16%…hahaha if that’s the case list me for transplant now! I can’t take a deep breath or blow out hard so a low number was expected. I hope tomorrow is another day of rest because when I’m sleeping I’m not paying attention to my pain. Thank you for all of your thoughts and prayers!

Day 3 UPDATE: Still in pain on my left side. An 8 on the pain scale. The pain medicines aren’t working because of the kidney issue. I was told that by one of my doctors. He said the pain meds are stay at the kidney and aren’t filtering through. Anyway, my kidney level is still the same as yesterday 2.8. I will continue fluids in hopes that it goes down. Last time I had acute kidney failure it took a week for my numbers to get in to the normal range. Also my numbers were much higher than, 6.9! I haven’t gotten as much rest today as I had hoped. Hopefully I will sleep better tonight.

(Sunday, Aug. 6th):  Quick update: I’m still in a lot pain, the doc is going to change my pain med because the 2 I’m on aren’t doing anything. No word yet on what that is going to be. My kidney level is down to 2.23, so we are going in the right direction.

Day 4 UPDATE: I didn’t get to sleep until around 3/3:30am so that wasn’t fun. That only meant I wanted to sleep all day and I tried, oh did I try. I think I “woke up” for good around 1, with a few naps after that. My kidney level came down some more to either 2.13 or 2.18. I can’t remember which one because I was asleep when they told me. Haha My pain is more under control today which is good. I moved down to a 6/7 on the pain scale. Don’t get me wrong, it still hurts a lot but I’m trying to stay on top of the pain meds so that we can keep it dulled a bit. I was supposed to have the hyda scan today but had to cancel due to the fact I can’t take pain med from midnight the night before. Oops. Plan is to keep doing what we are doing I guess until we hit the magical number of the normal range (.5-1.1).

Early morning update: kidney level is 1.9!!! We are getting there folks, we are getting there!

Day 5 UPDATE: Kidney level is down to 1.6 today. Word is, if my number is still trending down AND I’m only using Percocet (which I am) for pain, then I can go home tomorrow. Yay!!!

Day 6 UPDATE: Kidney level is 1.4! I’m going home! Now just to wait on walking papers. I will come on Monday to have labs drawn to make sure my kidney level has still continued to go down into the normal range.

Which brings us to now!  I am home.  Always after I am gone for any period of time there is stuff for me to do when I get home.  Even though my husband is here and gets the mail I have to go through it because he leaves it all piled up for me on the counter.  I have to unpack.  I have to take breaks to love on the boys (our dogs) because they won’t leave mama alone for a little bit.  I say that, but now they are asleep in their beds in the office while I type this.  I just copied my statuses from Facebook over to here to make it easier and to keep track/record of things.

We still have our fundraiser in 30 days!!!  It snuck right up on us for sure.

Until next time…

Hospital follow up today

Today was a decent day.  I had my follow up from my hospital stay today.  We did the usual clinic stuff.  My weight is up a few pounds since my last visit.  I’m sure it is all the good food and lots of snacks that we have been blessed with over the last week.  I’m not complaining because I need the calories and fat.  The thing is, all of my gummy bears and Snickers bites have already disappeared.  That may or may not have something to do with those few extra pounds. 🙂 My lung functions are holding steady at FEV1 of 1.39 / 47%.  They aren’t great but they are steady so I’ll take it.  They were all very concerned with how my kidneys decided to take a nose dive, or well a spike I guess out of nowhere.  I gave them a scare and they were all racking their brains for causes and solutions.   Continue reading

Home sweet home!

I got paroled today!  My creatinine was 1.82 this morning!!  After receiving the great news that my creatinine was down my sister walked into my hospital room.  Mind you, she lives in Kansas City and I’m in Knoxville, TN…11 hours apart!  I was speechless and that doesn’t happen often.  I was so surprised.  That made my day even better.  My doc came in and asked if I was ready to go home and of course I said yes.  I wasn’t going to argue with him.  Although I was ok with staying if it meant a sister sleep over in the hospital.  We haven’t done that in years.  I got my walking papers and was home by noon.  Continue reading

Stubborn kidneys

Another day in the books…  I am still nauseous and my eyes feel like they can’t focus at times.  I have pretty much no appetite and nothing sounds good at all but I keep snacking to keep my calories somewhat up.  My calorie intake is defiantly not where it needs to be but some is better than none.  My creatinine has been on a roller coaster.  So here are the numbers.  Monday it was 5.3, yesterday in the ER before fluids it was 5.99, last night after a bag of fluid and half a bag of fluid with sodium bicarb it was 5.6 and this morning it was 5.8.  As I said before the normal range is .5 – 1.1. Continue reading