Today I had CF clinic. Thanks to Trikafta my weight is up, not that I want it to be.  haha  My lung functions are holding steady at 37%/1.06 L FEV1.  In October they were 36%/1.02 L FEV1.  It is unclear if I will gain any lung function on Trikafta, only time will tell.  I’m just happy if I hold steady and put off lung transplant as long as possible which gives us more time to fundraise.  The hope is that Trikafta will extend the time between exacerbations (lung infection) needing IV antibiotics. Continue reading →