The next chapter: Life with Oxygen

Today was a day that I have not looked forward to happening in my journey in life with CF.  The day that oxygen was delivered to my house for 24/7 use or even only night time use.  I have always thought that when this day happened it meant “I was getting sicker” and that my life was on a downward spiral of CF progression.  In my life there have always been milestones that have signified different steps of CF progression to me.  Not everyone thinks the same as I do, this is just me. Continue reading

Miss my mama

My life changed forever at 8:55pm (CST) on Tuesday January 19th.  My mom breathed her last breath as my head was on her shoulder and her hand was in mine.  I never imagined that I would have to go through this at this young age.  Your parents are supposed to live into their 80’s and 90’s, not the young age of 59.   Continue reading