Tag: lungs

  • A few months ago I shared about the new CF drug Symdeko (Symdeko post).  After much tossing around of the idea of taking the new drug I finally decided to give it a try.  I started the drug 3 days ago.  It is twice a day and I have to take it with a meal/snack…

  • WOW!  We had a great tournament that raised $1,508!!!!  I’m amazed at the turn out once again.  We have great friends that offer great support.  We appreciate it very much, it means the world to us.