Today was clinic day and a short one at that, in terms of normal clinic days. No complaints here. It seemed like everyone was on vacation. My question is, why didn’t they take me with them? haha Continue reading
My first night in lock up….in CCU/ICU was as expected, NO SLEEP and constant flow of people in and out. If I totaled up my “sleep” from last night, I would have to guess I got about 2 hours. At 3am I had labs drawn, a chest X-ray taken and nasal swabs. Why at 3am? Your guess is as good as mine. They were completed nonetheless. Earlier in the night I had an EKG along with my first set of nasal swabs. Hahaha. Yesterday was brought to you by the number 2. I’ll explain; 2 sticks to get a peripheral IV for the chest CT with contrast, 2 sticks for a blood gas, 2 sticks to get my port accessed, 2 sticks from the lab tech for blood cultures since they have to be from 2 different sites, 2 sets of nasal swabs. There may have been more of the terrible twos but due to my lack of sleep, I can’t remember. Oh who am I kidding, my memory sucks and everyone knows that. Hahaha Continue reading
The lungs are a delicate thing. They are sacks of air that keep you alive. It is an understatement to say that breathing with crappy lungs is hard work. There are many things besides just the standard crappy CF lungs that can happen in someone with CF. A short list is the following; muscle/skeletal pain from all the coughing, collapsed lung (pneumothorax), pneumonia, pleurisy and lung bleeds (hemoptysis).