A little of this and a little of that

Let’s see….where to start.  It’s been 7 days since my power port was placed.  I’m healing nicely.  There has been minimal swelling and bruising.  The most painful part is the incision healing.  I have been using ice packs for the swelling and bruising.  There is a steri-strip over the incision that will come off when it’s ready.  I sure do want to rip it off though, it is making it to where if I move a certain way it pulls and is painful.   Continue reading

CF Clinic, Power Port, Grief

Yesterday (5/5/16) was good ol CF clinic.  Nothing spectacular to report there really in the sense that we didn’t change anything or add any extra tests.  My PFTs (lung functions were) basically the same.  My FEV1 was .93 L/ 31%.  My first 2 attempts were identical at .89 L/ 30%.  If I were a healthy (NON CF) Shannon the predictable FEV1 I should get is 2.96 L.  That is based on my age, gender, height, weight and race.   Continue reading

2 appointments today

Today was a busy fun filled day at UT hospital for 2 doctor appointments.  Ok, it wasn’t so fun filled but it sure was a long one.  It was about 7 hours today.  I had a big lapse of time between appointments which I spent in the cafeteria having some lunch and watching a movie with my sound canceling headphones so I could actually hear the movie.  Oh yes and of course answering emails, Fb messages and comments,etc.   Continue reading