Sick yet again!

Hello friends and family!  Seems like I was just here updating you all.  Well I am not feeling good again after only 2.5 weeks off of IVs.  I started with the dry unproductive cough again which was what happened before I was hospitalized at the end of March.  Along with achy and my chest is sore from all the coughing.  Plus I still have the pulled muscle on the left side of my chest which seems worse the last few days.  It hurts so bad to cough.  I’ve been trying to brace myself when I cough but that doesn’t even help.  It’s like something is stabbing me every time. Continue reading

Clinic appointment today

After 3 weeks of antibiotics, I am not all the way better.  I still have an annoying cough that wakes me at night.  I cough so hard that I see stars and almost see black…not cool.  Today’s appointment went as follows:  Vitals (all good,  O2 was 96 on 2L), My lung function was FEV1 of 38% / 1.08L which is still stable.  Stable is good when it comes to lung functions. Continue reading

Happy CF awareness to me

I have not been feeling good for about 3 or so week, maybe more.  I did the 2 weeks of IVs 2 weeks ago and wasn’t much better but that is probably due to the fact that my pseudomonas is multi drug resistant.  We are limited on what will “work” on the stubborn drug resistant bug (pseudomonas) in my lungs.  I made the dreaded call after the 4 days of 40mg of prednisone and no improvement.  I need something more therefore I had to call with all the I have coming up.  I have a busy 5 weeks ahead.  Next weekend we are going to the Zac Brown Band Concert, a bucket list item for myself.  Then I have a girls trip to the Gulf Shores the next week.  Then in 5 weeks we have our good friends wedding weekend. Continue reading

I’m a winner….

I had CF clinic today for a regular check up.  Nothing seems to be regular about me anymore when it comes to CF and my depression….but anyway.  My weight is just fine and on the high-end of fine.  I’m not a fan but that doctors like it.  Dang medicines making me gain weight.  I might end up being one of those “fat” CFers.  Well I already feel that way but on to the next subject. Continue reading

Impromptu CF clinic appointment

Saturday will be 14 days of IVs so I called my nurse to let her know how I am feeling.  I am still having the pain in my lower right side (just at the bottom of my ribs) that has been there for a few weeks.  I’m convinced that my right lung has it out for me.  It seems to be where most of my infection is, I fracture ribs from coughing on that side and I also get random pains on that side.  Maybe it’s my special party trick. Continue reading