Symdeko update/MRI results

I started Symdeko April 19th.  It started to affect my mood (depression and anxiety), my hair has been shedding and giving me slight acne.  I decided to stop taking Symdeko mainly due to the depression and anxiety issue.  I have not felt like myself in awhile.  I made the decision to stop the Symdeko and the Effexor and find another antidepressant that will hopefully work better for me.  Now I’m thinking maybe I should have just stopped the Symdeko, but I didn’t think it was causing any issues until I realized that was the only new thing.  Now that I’m off of the Effexor I will try my best not to go back on it if at all possible since it was so hard to come off of it. Continue reading

3 weeks of IVs complete

I finished 3 weeks of IVs earlier this week.  I do feel better than I did BUT I’m still having coughing attacks.  I’m attributing it more to asthma though.  I was offered prednisone at clinic on Friday (yesterday) but I declined for the time being.  I’m going to hold off and see if treatments and such can help.  We all know how much I love prednisone, NOT!  My lung functions were the same at FEV1 .96L/34%.  My first two attempts were 33% and my last one was the 34%.  I will follow-up in 6 weeks. Continue reading