Chapter 3 – Denial & Guilt

“Playing the Cards Life has Dealt” 

Denial is a common feeling when dealing with a genetic incurable disease.  The first people to deal with the denial and guilt are the parents when they get the news that their child has Cystic Fibrosis, a progressive incurable disease.  Most all parents leave the doctor’s office after receiving the diagnosis in a fog of “this can’t be real.”

Now a days most all parents/family members go to “Dr. Google” to find out what the World Wide Web has to say about CF and what it entails.  By “Dr. Google” I mean they go to and enter Cystic Fibrosis and start reading everything that their little brain can retain, all the good and bad.  The bad being what sticks with them.  As time goes on the parents should educate themselves from reputable sites like  Also speaking with other parents of CFers and people with CF will help them know they are not alone and they can do this.  Your CF clinic should be able to help you get in contact with others.

Some family members never get over the denial and/or guilt that their child/sibling/grandchild/niece/nephew/cousin/etc. has CF or whatever disease they are dealing with.  Thus the reason that CFers can feel like they are a burden on those in their life.

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