2017 was a rough year. It had its ups and downs. In January I had transplant clinic which was good. I’m holding steady according to them. I see them, at Barnes Jewish in St. Louis, once a year to check me out. January also brought the 1st anniversary of my moms passing which was hard. I still miss her every day. The hole her death put in my heart will never be filled. I was on IVs in February, April, May, July, August which lead to being in the hospital because of my creatinine (kidney level) being elevated again. I had my gallbladder removed in September and did a week of IVs after surgery as a precaution. More IVs in November and then this whole virus/bronchitis/CF exacerbation or whatever it is in December that put me in the hospital for a few days. Man that’s a lot of IVs! Continue reading
I haven’t been feeling great for at least a week if not more. I kept holding off calling/emailing my CF team because I was hoping it would “pass,” yeah I’m just a little stubborn. I sent the “white flag” email on Sunday. Some would like to call it the “Sunday surrender.” haha. Continue reading
Hello all! I have had many inquiries for Shannonigan gear, with a lot of them being about zipper hoodies. Lo and behold the sale is open and has zipper hoodies!!! The sale is open until November 26th!! Don’t wait until the last day, get them while it is fresh on your mind. Here is the link for the sale! Share it with your friends and family as well.
Until next time…
I remember when I could do a lot of things that I am unable to do now. Unfortunately, that is only going to get worse as time goes on and my lungs get worse. It is a major mind trip when you want to do things but your body won’t let you or your mind won’t let you because it knows your body can’t. If that makes sense. Continue reading
I saw my surgeon for my follow-up from gallbladder surgery and everything is good. All healed up! Not having the pain from having a bad gallbladder is great! I’ve known it needed to come out for a while now, I just needed it to finally act up. I told the surgeon the only thing left to take out is my appendix and these crappy lungs…hahaha. Continue reading
I forgot to update about my pain clinic follow up. Simple appointment really. Scheduled another injection for July 26th and follow up August 10th. It was most likely that the floating nerve didn’t get hit during he block. So we shall try again. Hopefully this one works and I may not need another one. Fingers crossed prayers said!!!!
SHANNONIGANS GEAR UPDATE: Lools like all gear has been delivered! Thank so much to everyone who purchased Shannonigan Strong gear.
CORNHOLE TOURNAMENT UPDATE: As of now we have collected close to $1,000 worth of items to be raffled off with more to come. I am so blessed with the friends and family I have who have worked hard at getting donations for the tournament.
I want to put out a challenge to all business owners who follow my blog and Go Fund Me to donate to the Lung Fund! Let see how much we can raise in a week from large donations from bigger businesses. Who will take my challenge??
I am spending some time with my sister, nieces and nephew this week at the lake which is nice. Sister time!!!!!
Today was another exciting day in lock up. I was NPO (no food or drink) as of 8pm last night because of the 2 episodes of hemoptysis (lung bleed/coughing up blood) I had yesterday afternoon and evening to prepare for an embolization. Continue reading