CF clinic check up

I spent the day at the hospital with 2 different appointments.  First up was my CF clinic check up from my 21 day course of IVs.  My main complaint today was the continued pain in my right side.  My appointment was at 9:30am and I was finished at 12pm.  A lot of people complain about waiting at doctors offices.  I, on the other hand, am used to it.  It is par for the course when you have CF (or any other chronic illness).  I respect that my doctors and nurses take their time with their patients because that means they will give me all the time I need when it is my turn.  My appointments are also long because I have to see other people during the visit, i.e.; respiratory therapist, dietitian, social worker, nurse, nurse practioner and/or doctor.  I am now a professional “waiter” by this stage in my life. Continue reading

Tennessee Allergens SUCK!

We know that living in Tennessee has taken a toll on my health in the area of lung function.  I have dropped 24% in the 22 months living here.  I have asthma along with CF so that is a double whammy.  I did skin allergy testing about a year ago and it showed that I wasn’t allergic to anything.  I was hoping that it would show something so I could have some answers as to why I was having such a hard time.  I was bummed.  I wanted answers.  Continue reading