Tag Archives: support system

Happy birthday to me…I’m 43!!

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My 43rd birthday was yesterday. February 1st should be a national holiday by now! Haha

I absolutely love my birthday. I know most women don’t like getting older but I’m not most women. Getting older is a blessing a lot of people take for granted.

Life expectancy numbers have never really worried me. It’s just a number. When I was born the life expectancy was around 12. Now for CF patients that were born between 2017-2021 the life expectancy is 53!!! There are now many more treatments and medications for CF including the revolutionary modulators like Trikafta that works on the cellular level. Research for CF is so important to extend the lives of those with CF. Finding a cure for CF is the ultimate goal. The CF Foundation has more than 70 chapters in the United States. Their slogan is “make CF stand for Cure Found.” You can go to http://www.CFF.org to find a local chapter or to donate to the cause. You can also find a Great Strides walk close to you. You can start a team or be an individual walker. Great Strides is the biggest fundraiser for the CFF.

Thank you for always checking in on me and for all the prayers and positive thoughts. Just remember that growing old is a blessing that isn’t offered to everyone.

Until next time…

Fundraiser Fun

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We had a fantastic fundraiser yesterday.  We played singo which is like bingo with song titles.  You listen to 30 seconds-1 minute of a song and if you have that song on your singo  card you mark it off.  You get a singo with 5 in a row like bingo.  Winners received gift cards to the restaurant where the event was held.  Next up was trivia.  That was a lot of fun as well.  The winners also won gift cards which were donated.  We also had 16 raffle baskets, one of which was custom made cornhole boards.  I’d say you had lot of fun things to do yesterday.

We had a great turn out showing lots of love and support.  It was greatly appreciated.  I had set a goal for myself of $1000.  Well that was surpassed twice.  We raised just over  $3000!!!

The money will go to the specific savings account we have set up for the lung fund to help cover medical costs now and for the future transplant costs.

We are truly humbled by the outpouring of love and support shown to us.  Thank you so very much for every donation.

Until next time…

Update and depression talk

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I guess I should update you all since my stay in “lock up” (aka the hospital).  My creatinine (kidney level) is finally back down in normal range.  It was .91 when I last had my blood drawn at CF clinic last Thursday.  Yay for that.  Even more yay, I can start to take ibuprofen, in moderation, for my aches and pains since Tylenol does nothing for me. Continue reading →

Doctor appointments GALORE!

Posted in Blog Life, Transplant Talk by

Just wanted to fill you in on some of the important doctor appointment dates that I have been waiting on.  Of course they are not soon enough for my liking but I shall deal with it.

Before I even get into these appointments, YES taking care of me IS a full time job that doesn’t pay well, however my reward is my family. Continue reading →

When will you be better?

Posted in Blog Life, Health update by

People ask or want to know when I will be better.  That is a great question. I have not felt great for a good while now, 2-3 months maybe.  I was in the hospital for 9 days and you would think I would come out better.  Being released from the hospital doesn’t mean I’m fixed by any means it means hopefully we have things situated and are heading in the right direction to being better. Continue reading →