Fundraiser Fun

We had a fantastic fundraiser yesterday.  We played singo which is like bingo with song titles.  You listen to 30 seconds-1 minute of a song and if you have that song on your singo  card you mark it off.  You get a singo with 5 in a row like bingo.  Winners received gift cards to the restaurant where the event was held.  Next up was trivia.  That was a lot of fun as well.  The winners also won gift cards which were donated.  We also had 16 raffle baskets, one of which was custom made cornhole boards.  I’d say you had lot of fun things to do yesterday.

We had a great turn out showing lots of love and support.  It was greatly appreciated.  I had set a goal for myself of $1000.  Well that was surpassed twice.  We raised just over  $3000!!!

The money will go to the specific savings account we have set up for the lung fund to help cover medical costs now and for the future transplant costs.

We are truly humbled by the outpouring of love and support shown to us.  Thank you so very much for every donation.

Until next time…

Update and depression talk

I guess I should update you all since my stay in “lock up” (aka the hospital).  My creatinine (kidney level) is finally back down in normal range.  It was .91 when I last had my blood drawn at CF clinic last Thursday.  Yay for that.  Even more yay, I can start to take ibuprofen, in moderation, for my aches and pains since Tylenol does nothing for me. Continue reading

Doctor appointments GALORE!

Just wanted to fill you in on some of the important doctor appointment dates that I have been waiting on.  Of course they are not soon enough for my liking but I shall deal with it.

Before I even get into these appointments, YES taking care of me IS a full time job that doesn’t pay well, however my reward is my family. Continue reading

When will you be better?

People ask or want to know when I will be better.  That is a great question. I have not felt great for a good while now, 2-3 months maybe.  I was in the hospital for 9 days and you would think I would come out better.  Being released from the hospital doesn’t mean I’m fixed by any means it means hopefully we have things situated and are heading in the right direction to being better. Continue reading