Let’s see what’s going on in there

One of the pulmonary doctors (Dr. G) came to see me this morning and of course I was still asleep so I had to wake up to talk to him. The result of waking up and sitting up in bed was a massive coughing fit. I guess the good side of all of that is that the doctor got to see my coughing fit in action. He asked if this was how every morning went. In between coughing I said, “yep.”  Continue reading

Tennessee Allergens SUCK!

We know that living in Tennessee has taken a toll on my health in the area of lung function.  I have dropped 24% in the 22 months living here.  I have asthma along with CF so that is a double whammy.  I did skin allergy testing about a year ago and it showed that I wasn’t allergic to anything.  I was hoping that it would show something so I could have some answers as to why I was having such a hard time.  I was bummed.  I wanted answers.  Continue reading

Normal…what is normal anyway?

What is “normal?” Normal is a relative term. My normal is not someone else’s normal. My normal is what I know. Now with that said you might ask where I’m going with this. Well let me fill you in…haha.

My normal consists of coughing, lung cookies (sputum), breathing treatments, vest treatments, lots of pills, chest port, IV antibiotics, club med stays (hospital stays), shortness of breathe, wheezing, being worn out among other things. I am not able to just get up and go and that is probably one of the most frustrating things. The first thing I do in the morning is a treatment. I am almost worthless until I do a treatment. I know some CFers are able to just carry on and cough but that annoys me (for myself). I am unable mentally to just continue to cough if I know that a treatment will help. I get frustrated with myself when I am coughing a lot. I don’t realize how much I am coughing until I hear myself on video/recording or until someone comments on my cough. Usually it is my husband who comments and asks how I’m feeling. He usually knows when I’m getting sick before I realize it by my increased cough.

Continue reading