CF Happens

I saw the ENT (Ear Nose and Throat doctor) yesterday to check on the ol’ sinuses since MRI showed inflammation in my sinuses. A MRI is not the go to diagnostic test for sinus issues. A sinus CT is the correct test to really see what’s going on in the sinuses. The MRI was more of a “is there a random tumor hanging out in my brain that could be contributing to my headaches” and not for a look at my sinuses. There was no random tumor in my brain so that’s good. haha.

Anywho, the ENT said my sinuses look really good. My last sinus surgery was in 2001. In that surgery they put “windows” in my cheek sinuses. “Windows” are basically drilling holes in the bottom of the sinus cavities to keep them draining and not holding gunk (bugs/bacteria) in them which causes problems. It’s weird to me that sinuses are just holes in your head that hold nasty stuff that cause pain and pressure. The ENT said that she could order a sinus CT to get a better look at the sinuses as a whole. I told her that I’ve been radiated a lot lately so I’m good with NOT doing the CT and just getting seen by her if/when I have an issue come up. She was good with that. Check that one off the list!

My CF doctor called me today to get my permission for him to send my MRI scan images and medical records to a consulting Neurologist to get a more qualified reading than just the radiologist reading of my MRI. This will prevent me having to make an appointment with said Neurologist and have to wait 6 month to be seen. Of course I said “uhhh yes send all the things needed!”

I saw my PCP today for a follow-up about my blood pressure since starting Losarten 25mg/day a few weeks ago. My BP has come down some but not down to where she would like it. She would like my top number to 130 or pretty darn close to it. On average, my top number has been around 138-145 maybe. She upped my dose of Losarten to 50mg/day. I’ll do that for a week and if it isn’t down, consistently, around 130 then I’ll up my dose to 75mg/day and do that for a week. If 75mg/day doesn’t do the trick then I’ll up it to 100mg/day, etc. She thinks 50mg/day will do the trick though.

I have my nerve conduction test (EMG) next week. I’m hoping that I will get some answers about why my left thigh is STILL burning. As we know, my body doesn’t play by the rules or go by the books so who knows what I will find out. Fingers crossed!! I think that brings everything up to date. As usual, I’ll update when I have something to update about.

Until next time…