CF Happens

First let me quickly tell you how home IVs went. Thankfully the pleurisy pain is gone! I asked to extend IVs one more week just to make sure I was as good as I could be. I finished 21 days of IVs on Tuesday the 29th. I’m feeling better lung wise. I’m basically back to my baseline which means my normal.

Now on to the surgery date…my surgery is scheduled for Monday, January 13th. I won’t know a surgery time until at least the Friday before because they schedule his surgeries according to what cases he has that day. I will start IVs at home 14 days before my surgery so that I have good round of antibiotics in me leading up to surgery. I won’t need to be admitted before my surgery. I’ll just show up to the hospital for surgery and be admitted after surgery.

Like I said in a previous post, I won’t know how long I’ll be in the hospital until after surgery. It all depends on needing a drain in my back and how my recovery is going. Fingers crossed that it all goes smoothly and there’s not too many bumps in the road.

I’m ready to evict “Pete the peanut.” This lower back pain, hip pain and thigh pain is for the birds. 10/10 would not recommend having a schwannoma (nerve sheath tumor). If you aren’t up to date on “Pete,” I named my tumor “Pete” because he’s the size of a peanut (about 2cm in diameter) so “Pete the peanut” was “born.” haha

I had the MRI of my cervical spine and thoracic spine to check for other tumors. There are no other tumors!! I think that sums up the latest.

Until next time…