CF Happens

The new week in lock up means a different attending/rounding doctor.

The attending came to see me this morning. He wanted me to do lung functions to see where I’m at. My last set of lung functions were from my sick visit Thursday the 27th before going to the ER on Monday the 31st. My lung function was 26% and 28% at that sick visit. I did a bedside lung function this morning. All 3 tries were 27%, exact same percentage and liters every try. I’ll take consistent numbers at this point with how much my lungs have been through this last week. Haha

The full CF team meets every Monday to talk about different patients cases. Today, I was a topic of discussion, obviously. Haha

We have a plan in place y’all!! Are you ready for it? I’m going HOME tomorrow!

Here’s the treatment plan going forward…

I’m going to continue IV antibiotics (Zosyn) at home. My last dose of Zosyn will be Monday the 14th. This will be a total of 14 days of the Zosyn. I’ll do my normal outpatient labs while on IVs.

Next thing on the list…the prednisone taper. I did 50mg oral prednisone today. I will do 50mg for 5 days (includes today), then drop 10mg every 5 days with 10mg being the last step down.

I’ll see CF clinic at some point after I finish antibiotics, maybe waiting until the prednisone is done. To be determined. I’m sure they will have me send in home spirometry (lung functions) once or twice while finishing out the prednisone taper.

I think that covers all the things. I’m so ready to stand in MY shower with all that hot water blasting my very sore chest muscles for a very long time. Thank goodness we have a tankless water heater. Haha

Until next time…