CF Happens

I’m a pro at getting sick and needing to start IVs on a holiday or close to it. This round of IVs is no different. Haha. The orders for IVs didn’t get to the home infusion pharmacy until basically closing on Friday. With that said, they weren’t delivered until 7pm on Tuesday night. I was able to get one dose in on Tuesday night.

I started the prednisone on Saturday. I held off on starting the oral levaquin for the simple fact that oral antibiotics don’t work for me anymore. They used to “bandaid” things and get me by. Now, I’m not willing to deal with the side effects some of them cause if they aren’t going to improve my symptoms at all, especially if I’ll be starting IVs soon. Oral levaquin gives me pretty bad arthritis joint pain, mostly in my knees. It’s no fun.

How am I feeling now you ask…well, basically the same. No big improvements besides not feeling like major dog doo. I’m still getting out of breath easily, coughing a lot and my body is really sore from coughing so much. No new pulled muscles though, so I’ll take it.

You have to remember, antibiotics don’t work their magic like they used to for me. After 45 years of taking antibiotics and weeding out what will and won’t work as far as my bugs (bacteria) go as well as what I can actually take and I’m not allergic to, I’m limited.

Unfortunately, this is the nature of the beast that is CF progression. My lungs hold onto all the bacteria and with all the scarring it’s just there and not going anywhere. When you add in my bad asthma and significant bronchiectasis, it is what it is. I can’t change how bad my lungs are and I can’t make them better. There are no essential oils, magic spells or other random things you find on the internet that will change the reality of it.

I don’t say this to be “woe is me” because it’s not that at all. It’s to educate the real deal life of CF. There’s no ifs, ands or buts about it.

Yes, it sucks but it’s my reality. I’ve had “a few” years to come to grips with the inevitable. No worries, I’m ok. I mean obviously, I would rather it NOT be my reality but I’m ok. I promise! Remember, I’m too stubborn to give up and quit. I will rest when I need to and keep kicking ass the best I can!

Until next time…