Category: Blog Life

  • I had an appointment today to check up on how I’m feeling since doing IVs and being on Trikafta for 3 months. My lung functions are back to my baseline. My FEV1 is 36%\1.02L. Before IVs it was down to 33%. I’m feeling better thankfully. Now to what I’ve been asked about often, the coronavirus.…

  • I have been sick since my birthday, so 2 weeks now.  I tried oral antibiotics which didn’t help.  I threw in the towel and called my nurse to get IVs started.  I had a “sick visit” today since they wanted to see me and get lung functions done.  My FEV1 was down a bit to…