Category: Blog Life

  • I turned 40 on Saturday the 1st!!!  Go me for hitting a milestone in life with CF.  When I was born the life expectancy was 12.  It is now 37.5, I believe.  So to say it’s a milestone that I made it to 40 is maybe an understatement.  I am just so excited to be…

  • Today I had CF clinic. Thanks to Trikafta my weight is up, not that I want it to be.  haha  My lung functions are holding steady at 37%/1.06 L FEV1.  In October they were 36%/1.02 L FEV1.  It is unclear if I will gain any lung function on Trikafta, only time will tell.  I’m just…