CF Happens
Sometimes in life, CF happens…pun intended.
Category: Blog Life
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Being in limbo sucks. I’m not sick enough for transplant just yet but I’m sick enough to be limited in what I can do. It’s like do I wish to get sicker so I can just get a transplant and be done with it, as if it’s that easy, or what. No I don’t want…
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I got home from the hospital on Tuesday afternoon. It was a long week in lock up. I survived though. I have major steroid brain after having a lot of IV solumedrol steroid (80mg a day) while inpatient. I am now tapering down from 60mg prednisone, a long taper. I’m so fuzzy, scatterbrained, antsy and…