CF Happens

Sometimes in life CF (Cystic Fibrosis) happens…pun intended

recent posts

  • Shannonigans Gear Sale!!!

    You’ve been asking for it and I’m such a good person that I give you what you ask for….SHANNONIGAN GEAR ORDERING TIME!!!! I’m super excited about the tweak in design this year considering my up coming transplant evaluation. The sale will last 30 days so budget it in NOW!! Here is the link for the online sale. Go here, Shannonigans Gear Online Sale to go shopping for your new Shannonigans gear.

    This year I changed up the design just a bit.  I think it is fitting with the lung transplant evaluation in a month.  You have 2 choices of color on 3 of the items, 1 being dark Heather grey and the other being sports grey (lighter grey).  There are also the wicking/dri-fit type of material that lots of people really like.  Those are available in the dark Heather grey.  I added 1 shirt for fun, it’s a wicking type material with digital camo on the sleeves.  I hope you like them. I know I am loving them.

    The sale will last for 30 days online.  When those 30 days are up, your ordering time is up.  Please budget it in now so you don’t miss the deadline.  The deadline is June 5th.  Please help us spread the awareness of Cystic Fibrosis.  May is CF Awareness and all! 🙂Screen Shot 2016-05-05 at 9.57.43 PMScreen Shot 2016-05-05 at 9.57.17 PMScreen Shot 2016-05-05 at 9.56.57 PMScreen Shot 2016-05-05 at 9.56.20 PM

    ‪PLEASE SHARE THIS WITH EVERYONE SO EVERYONE HAS A CHANCE TO ORDER!!

  • CF Clinic, Power Port, Grief

    Yesterday (5/5/16) was good ol CF clinic.  Nothing spectacular to report there really in the sense that we didn’t change anything or add any extra tests.  My PFTs (lung functions were) basically the same.  My FEV1 was .93 L/ 31%.  My first 2 attempts were identical at .89 L/ 30%.  If I were a healthy (NON CF) Shannon the predictable FEV1 I should get is 2.96 L.  That is based on my age, gender, height, weight and race.   (more…)