Here’s a quick catch up on the burning pan I’ve been having in my left thigh since December, after receiving the Reclast infusion… We first treated the burning thigh pain as an adverse reaction to the Reclast infusion with a long course of Pepcid (for it’s antihistamine properties), Prednisone and Aleve considering it started about 3 days after the infusion. The burning pain never went away. Next step was getting an X-ray of my left hip and thigh (checking the boxes), I knew it wasn’t going to show anything, and it didn’t show anything. Next up was a MRI of my left hip and thigh. The MRI showed a moderate labrum tear in the hip and some arthritis. I have no idea how I tore my labrum. I feel like I would remember a fall or something that was bad enough to tear my labrum. haha. That brings us to today’s appointment with ortho.
The ortho doc wanted another X-ray view of my hip and a view of my pelvis, so I did that in the office before I saw him. He watched me walk. I have no limp or difficulty walking. While I was standing he pressed on my lower back and hip to see if there was pain, no pain. He manipulated my hip while I was sitting to see if one movement caused more pain than another, no pain. My hip isn’t what hurts, it’s my thigh. I asked if he thought this could be deferred pain from the labrum tear. He said possibly but not likely. I asked if he thought it could be nerve pain, he didn’t seem too convinced about that one either (probably because he’s a bone/ligament guy haha).
The PA did a steroid injection in my hip as a diagnostic tool to see if it relieves the thigh pain at all. I go back in 3 weeks for a follow up to discuss if the steroid injection helped at all and what his thoughts are on the next step. In the meantime, I’ll be reaching out to my PCP to ask about getting a referral appointment with neurology to see what their thoughts are on it possibly being nerve related and treatment options. The burning pain is always there but gets worse randomly. Sitting in the car is when it hurts the most. Ibuprofen and Tylenol doing nothing for the pain. This random burning thigh pain is par for the course for how my body acts. There is no explanation on why my body does the things it does. My body doesn’t play by the rules. haha. I’ll update when I have something to update.
CF RELATED UPDATE: I’ve had an increased cough for about a week or two and a sore throat. I’m assuming the sore throat is from sinus drainage but I’m not blowing anything out and not getting anything out with sinus rinses. It’s probably just a good ol’ cold, covid test is negative. I have CF clinic May 16th.
Until next time…