Virus hell

I started having viral symptoms on the 22nd)…fevers, body aches, chills, horrendous cough, horrible chest pain from all the coughing, shortness of breath, etc. I finally had enough yesterday and had to go to the ER. There was no CF clinic for me to be seen in this week so ER it was. I tested negative for the flu which I was exposed to. My chest X-ray showed no changes and no pneumonia, all good there. Labs showed that my white count was elevated so my body was definitely fighting something.  I was started on IV Zosyn and oral Levaquin. I didn’t get to my room until 9pm.  I did lung functions while in the ER and my FEV1 was down 10% to 28%.  That’s a decent drop.  This virus or whatever it is a doozy. Continue reading

I’m a winner….

I had CF clinic today for a regular check up.  Nothing seems to be regular about me anymore when it comes to CF and my depression….but anyway.  My weight is just fine and on the high-end of fine.  I’m not a fan but that doctors like it.  Dang medicines making me gain weight.  I might end up being one of those “fat” CFers.  Well I already feel that way but on to the next subject. Continue reading

Impromptu CF clinic appointment

Saturday will be 14 days of IVs so I called my nurse to let her know how I am feeling.  I am still having the pain in my lower right side (just at the bottom of my ribs) that has been there for a few weeks.  I’m convinced that my right lung has it out for me.  It seems to be where most of my infection is, I fracture ribs from coughing on that side and I also get random pains on that side.  Maybe it’s my special party trick. Continue reading

Chest CT results

I had a chest CT yesterday.  It showed a few new spots/infiltrates which are infection but generally speaking it is stable-ish from my last chest CT, no major changes just subtle changes.

I haven’t been feeling good for a week or more.  Mornings are the worst, as usual, but once I get moving and do my morning breathing treatment it is more tolerable in general.  I have been having my usual symptoms of an exacerbation; increased cough, increased sputum, increased fatigue, increased pain on my right side of my chest, increased over all blah feeling.

All of that means that I am the winner of IVs for the next 21 days/3 weeks!!  I will be on Colistin (IV push) every 12 hours and Zosyn (IV ball) every 6 hours.  IVs take a lot out of me so I will be worse before I’m better.  Hopefully this means I will be good to go for our busy house full over Christmas.  They are drawing fungal labs to verify if there is anything fungal could be the culprit.  I will be seeing my CF team again on December 15th.  I will be having a repeat chest x-ray a few days before that to see if there are any changes.  I’m starting the IVs tonight but will only get 1 dose of each medicine in tonight.  21 days of IVs should be December 8/9.

Until next time…