Impromptu clinic day

Well my 2018 has been shitty so far, literal and figuratively speaking.  Not that you cared to know that.  I got that virus around Christmas weekend and it seems to have found a happy home in my body.  I have been super short of breath just walking and even sitting therefore I have been using my oxygen pretty much 24/7, unless it doesn’t reach where I’m going in the house. Continue reading

2017 at a glance

2017 was a rough year.  It had its ups and downs.  In January I had transplant clinic which was good.  I’m holding steady according to them.  I see them, at Barnes Jewish in St. Louis, once a year to check me out.  January also brought the 1st anniversary of my moms passing which was hard.  I still miss her every day.  The hole her death put in my heart will never be filled.  I was on IVs in February, April, May, July, August which lead to being in the hospital because of my creatinine (kidney level) being elevated again.  I had my gallbladder removed in September and did a week of IVs after surgery as a precaution.  More IVs in November and then this whole virus/bronchitis/CF exacerbation or whatever it is in December that put me in the hospital for a few days.  Man that’s a lot of IVs! Continue reading

Life Update-Air Force Retirement

I don’t write much about my family but this is a big update!  My husband is retiring from the Air Force after 20 years service today.  I can’t begin to tell you how proud I am of him and all he has done for our country and our family. 20 years of service is a great accomplishment in the Air Force, and in any military branch. He has done our country a major service that comes with a lot of stories for generations to come. Continue reading

3 Weeks of IVs down

Just a short update:  I finished 21 days of IV Aztreonam on Monday.  The Levaquin was not extended which I am grateful for.  It causes me lots of arthritic pain and makes moving around painful in my joints, all over.  As for how I’m feeling now…I’m decent enough.  I still have a dry sounding productive cough.  I will keep an eye/ear on it. Continue reading

Life update

I saw my surgeon for my follow-up from gallbladder surgery and everything is good.  All healed up!  Not having the pain from having a bad gallbladder is great!  I’ve known it needed to come out for a while now, I just needed it to finally act up.  I told the surgeon the only thing left to take out is my appendix and these crappy lungs…hahaha. Continue reading

The Last 6 Days…

This is what the last 6 days have looked like to me…

Thursday, August 3rd:  My nurse called and said my kidney level (creatinine) was up today when I had my bi-weekly labs drawn. So I’m at the ER getting checked in then getting admitted. The plan is to get me hooked up to fluid to help flush out my kidneys. It’s not as high as it was the last time I was admitted for acute kidney failure which is good that we caught it. The reason my kidney level is high is from the antibiotics that are filtered through my kidneys. Sometimes the kidneys take a hit. I’ll keep you all updated. Continue reading