Hello all! I have had many inquiries for Shannonigan gear, with a lot of them being about zipper hoodies. Lo and behold the sale is open and has zipper hoodies!!! The sale is open until November 26th!! Don’t wait until the last day, get them while it is fresh on your mind. Here is the link for the sale! Share it with your friends and family as well.
Until next time…
I remember when I could do a lot of things that I am unable to do now. Unfortunately, that is only going to get worse as time goes on and my lungs get worse. It is a major mind trip when you want to do things but your body won’t let you or your mind won’t let you because it knows your body can’t. If that makes sense. Continue reading
I saw my surgeon for my follow-up from gallbladder surgery and everything is good. All healed up! Not having the pain from having a bad gallbladder is great! I’ve known it needed to come out for a while now, I just needed it to finally act up. I told the surgeon the only thing left to take out is my appendix and these crappy lungs…hahaha. Continue reading
Yesterday was surgery day for my gallbladder removal. My gallbladder has been bothering me for a few months if not longer. I had lots of gallstones per the ultrasound. On the ultrasound, it was also constricted like it does when you are eating when it wasn’t supposed to be because I hadn’t eaten for at least 8 hours. Then was the hyda scan which is where they inject a nuclear substance through IV and wait for it to get into your system so they can see the things they need to see. The hyda scan took longer than it should have because my gallbladder was playing hide and seek, it wasn’t showing up within the hour like it should have. I had to go back for more scans/pictures an hour later and if it hadn’t shown up so slightly at that point I would have had to wait 3 more hours! Thankfully my gallbladder showed up ever so slightly but good enough to show that it wasn’t cooperating. When I saw the surgeon 2 days later there was no debate, it was coming out. Continue reading
We had a fantastic fundraiser yesterday. We played singo which is like bingo with song titles. You listen to 30 seconds-1 minute of a song and if you have that song on your singo card you mark it off. You get a singo with 5 in a row like bingo. Winners received gift cards to the restaurant where the event was held. Next up was trivia. That was a lot of fun as well. The winners also won gift cards which were donated. We also had 16 raffle baskets, one of which was custom made cornhole boards. I’d say you had lot of fun things to do yesterday.
We had a great turn out showing lots of love and support. It was greatly appreciated. I had set a goal for myself of $1000. Well that was surpassed twice. We raised just over $3000!!!
The money will go to the specific savings account we have set up for the lung fund to help cover medical costs now and for the future transplant costs.
We are truly humbled by the outpouring of love and support shown to us. Thank you so very much for every donation.
Until next time…
I guess I should update you all since my stay in “lock up” (aka the hospital). My creatinine (kidney level) is finally back down in normal range. It was .91 when I last had my blood drawn at CF clinic last Thursday. Yay for that. Even more yay, I can start to take ibuprofen, in moderation, for my aches and pains since Tylenol does nothing for me. Continue reading
This is what the last 6 days have looked like to me…
Thursday, August 3rd: My nurse called and said my kidney level (creatinine) was up today when I had my bi-weekly labs drawn. So I’m at the ER getting checked in then getting admitted. The plan is to get me hooked up to fluid to help flush out my kidneys. It’s not as high as it was the last time I was admitted for acute kidney failure which is good that we caught it. The reason my kidney level is high is from the antibiotics that are filtered through my kidneys. Sometimes the kidneys take a hit. I’ll keep you all updated. Continue reading