Every February 1st at 3:05pm CST my phone rings….but not this year. This is one of the first firsts without mom here, already. Mom would call at the exact time I was born to tell me happy birthday, it was her thing she did. I never thought it was weird that she didn’t call earlier in the day because I knew the call was coming. Some years she couldn’t wait that long and would say, “sorry, I tried to wait until 3:05pm but I can’t wait anymore. Happy birthday Gert! I love you!” Gertrude has been my nickname with my mama since I was a baby. She called me “gaggy Gert” because I would projectile vomit before we got the CF diagnosis and I got on enzymes for my digestive issues. “Gaggy Gert” morphed into “Gert,” “Gertrude,” “Gertrude La Rue” and almost anything that sounded good with Gert attached to it. It was cute and all until mom would yell, “Gertrude, where are you? get over here!” across a store when I was a preteen. (more…)
CF Happens
Sometimes in life CF (Cystic Fibrosis) happens…pun intended
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This post might be a little scatterbrained, just bear with me. I have been sleeping a lot which is the usual when I am not feeling good. I slept a little better last night and by “a little” I mean very very marginal. It’s a good thing that I can go back to sleep when woken up in the middle of the night and early morning. I slept most of the day yesterday and most of the morning today. I forced myself to muster up enough energy to take a shower. Then I quickly realized that was a dumb idea. Hahaha. I had to catch my breath shortly after getting in the shower and then catch my breath once I got out. Then again while getting dressed and drying my hair, etc. You don’t realize how much energy and oxygen it takes to do the simplest things until you feel like they have been stripped from you. (more…)
CF Happens 