CF Happens

Sometimes in life CF (Cystic Fibrosis) happens…pun intended

recent posts

  • Florida trip and CF awareness month

    It has been a busy few weeks.  Heck, it’s been a busy few months. 

    I was on IVs, then in the hospital for kidney failure then a few weeks of recovery and energy storing for my trip to Florida this past weekend.  My sister and I went to Miramar Beach in Destin, FL this weekend.  We arrived Friday morning and left Monday evening.  We packed in a lot of time on the beach laying in the sand, enjoying the water and soaking up the sun.  We also visited some of the “famous” places there like McGuire’s and AJ’s.  We even got tattoos!  My sister’s says “With Every Breath” and mine says “Every Breath Counts.”  They are on our ribs under the bra line.  To seal the weekend we went for a helicopter tour to see some sharks and dolphins.  It was beyond beautiful!  I could have stayed up there all day. (more…)

  • Thankful

    I received most of my lab results and they are looking good still.  Thursday my creatinine was 0.86 still good.  My BUN (blood urea nitrogen…a test to see how well your kidneys are working) was 16.  Normal range is 10-20.  Monday the 21st my BUN was 15, so it has been behaving.   (more…)