Today was a decent day. I had my follow up from my hospital stay today. We did the usual clinic stuff. My weight is up a few pounds since my last visit. I’m sure it is all the good food and lots of snacks that we have been blessed with over the last week. I’m not complaining because I need the calories and fat. The thing is, all of my gummy bears and Snickers bites have already disappeared. That may or may not have something to do with those few extra pounds. 🙂 My lung functions are holding steady at FEV1 of 1.39 / 47%. They aren’t great but they are steady so I’ll take it. They were all very concerned with how my kidneys decided to take a nose dive, or well a spike I guess out of nowhere. I gave them a scare and they were all racking their brains for causes and solutions. (more…)
CF Happens
Sometimes in life CF (Cystic Fibrosis) happens…pun intended
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I had labs drawn yesterday to check my creatinine levels again. After 2 sticks and barely enough blood I went home to wait for results. My creatinine was 1.03 yesterday!!! Remember, normal range is .5 – 1.1 so I am barely in there but I’m in there. The 1.03 is a long way from the 5.99 I was in the ER a week ago. My numbers are now in the normal range but I am feeling far from “normal” again. (more…)
CF Happens 