My friend shared the picture below on facebook and it got my mind turning. “Burden” is such a strong word when speaking of relationships, friends and family. As a person with CF (I speak for myself) you tend to feel like a “burden” to those around you when you aren’t feeling well or having an “off” day. When you are “on your game” and feeling decent or good enough it is different. The definition of burden is a load, especially a heavy one. There are times that you feel like your existence (with CF) is all around a burden because plans have to change, things don’t go as planned, sacrifices are made and all you want is to be “normal” and have “normal people” problems.
CF Happens
Sometimes in life CF (Cystic Fibrosis) happens…pun intended
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Well well look what we have here…rebellious lungs, big surprise there! I sent my nurse an email on Friday letting her know about the blood and that I felt tight and wheezy. I also let her know that I stopped the TOBI podhaler since I am pretty sure that was the culprit to the blood AND the tightness and wheeziness. She agreed and was “ok” with me stopping it. As the weekend went on I was no better and maybe worse off. I texted my nurse to ask if I could go ahead and start some prednisone that I had on hand at home. She never got back to me because the doctor never got back to her. She texted me this morning asking that I call her when I was up. (more…)
CF Happens 