I am on day 17 of IV Cipro and IV Aztreonam. I am feeling “better” but I use that term loosely. I also don’t want to jinx myself by saying I am feeling “better.” haha However, I am better than I was. Day 1 through about 4 was brutal with the fevers and recovering from my whirlwind trip to KC…12 hours driving there, 37 hours there, 12 hours driving back. I felt horrible the first few days back home but I am happy to report I am better than I was. I still get worn out pretty easy and try my best to take it easy. The first week of IVs I did a lot of sleeping which helps. I am now to a point where I feel like I can make it through the day without a nap, depending on what I have going on. It is hard to be off your A game when there is so much that needs to get done. For me and the OCD side of me it is hard to sit back and do nothing when there are things I could be doing. I know, I know…”rest Shannon!” I do my best. There are days that I have no choice but to do nothing because my body makes me. The other days I test the limits as usual. haha (more…)
CF Happens
Sometimes in life CF (Cystic Fibrosis) happens…pun intended
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Once again I have fallen off the radar in some aspects as I do when I get sick. It is hard for me not to fall off the radar when I’ sick. I try not to because I know that it worries some. With that said, I figured I would try to paint a picture of what being sick looks like for me.
First of all, being sick drains me of all energy. The infection that takes up camp in my lungs is a constant battle. It is never eradicated, it is just a matter of how active it is and if it is causing me problems. If we treated me with antibiotics every time I cultured something I would never be off of IVs. We only treat when I am showing symptoms of an active infection such as increased cough, increased sputum production, change in sputum color (darker/brighter=more infection), sleeping more, get worn out easier, short of breath, wheezing, chest tightness, etc. (more…)
CF Happens 