CF Happens

Sometimes in life CF (Cystic Fibrosis) happens…pun intended

recent posts

  • What does being sick look like

    Once again I have fallen off the radar in some aspects as I do when I get sick.  It is hard for me not to fall off the radar when I’ sick.  I try not to because I know that it worries some.  With that said, I figured I would try to paint a picture of what being sick looks like for me.

    First of all, being sick drains me of all energy.  The infection that takes up camp in my lungs is a constant battle.  It is never eradicated, it is just a matter of how active it is and if it is causing me problems.  If we treated me with antibiotics every time I cultured something I would never be off of IVs.  We only treat when I am showing symptoms of an active infection such as increased cough, increased sputum production, change in sputum color (darker/brighter=more infection), sleeping more, get worn out easier, short of breath, wheezing, chest tightness, etc.   (more…)

  • 1400 miles, car accident & IVs

    It was an interesting week to say the least.  Now I will tell you why.  I made a trip to KS because my mom was supposed to have a procedure done for her SVT (racing heart).  I drove 12 hours to KS from TN on Tuesday.  I wasn’t feeling the greatest but I wanted to be there so I went.  I made it there around 6:30pm.  My mom’s nurse called to give her her sputum culture results which was 2 strands of pneumonia at about 7pm.  Her nurse had to notify the cath lab to see if they wanted to proceed.  They started her on oral antibiotics.  The doc called in the morning and postponed the surgery for a week or 2, until she is “clear.”  With that said, it was a good thing they didn’t proceed because she needs time to get better first.  At this point I still don’t feel good.   (more…)